CION Cancer Clinics
Nerve sacrifice and what it costs you | CION Cancer Clinics
In a sacrectomy, some nerves are removed with the tumour when they run through it. Which nerves go, and on how many sides, decides what changes: bladder and bowel control, sexual function, walking and feeling when you sit. This page explains what each nerve does, the running costs families face at home, what can recover, and what to ask before you consent. CION Cancer Clinics’ surgical oncologists in Hyderabad can talk this through with you.
On this page
- What does it mean when nerves are sacrificed in a sacrectomy?
- How does the level of the cut change what you keep?
- Which parts of daily life can change?
- What does nerve loss cost a family after discharge?
- Does any function come back after the operation?
- What do families often believe about nerve loss?
- What should you ask about the nerves before giving consent?
- Common questions about nerve sacrifice
The short answer
What does it mean when nerves are sacrificed in a sacrectomy?
It means some of the nerves leaving the sacrum are cut and removed with the tumour, because they run through it or are wrapped in it. What you lose depends on which nerves go, and whether they go on one side or both.
Why a surgeon would cut a working nerve
Tumours such as chordoma come back where even a thin layer is left behind. If a nerve runs through the tumour, peeling the tumour off it usually leaves cells behind. So the team weighs the nerve against the chance of the tumour returning, and sometimes the nerve has to go.
What the sacral nerves control
The nerves are labelled from the top, S1 downwards. The upper ones help the calf muscles push the foot down, which you use to walk and climb stairs. The middle ones carry most of the signals for the bladder, the bowel and sexual function. The lowest ones give feeling around the back passage and fine control of the muscle that holds stool in.
Why one side or both matters
Each nerve comes in a pair, one on the left and one on the right. The bladder and bowel can often manage on the signals from one side. When the matching nerves on both sides are removed, that backup is gone, and function changes much more. So when your surgeon talks about nerves, ask not only which level, but whether it is one side or both.
What this page cannot tell you
It cannot tell you which of your nerves are at risk. That depends on the height of your tumour on the MRI, and your surgeon can only say it after reading your own scans.
Height of the cut
How does the level of the cut change what you keep?
Daily life
Which parts of daily life can change?
These are the changes families say they most wish they had understood before the operation.
Passing urine
The bladder may not feel full or may not empty on its own. Many people learn to pass a thin catheter themselves several times a day. It sounds hard, and most learn it within days.
Opening the bowels
Stool may not move well, and you may not feel when it is coming. A daily routine of diet, softeners, suppositories or washouts takes the place of the urge.
A stoma is sometimes made if a routine cannot work.Sexual function
Men may have trouble with erections or ejaculation. Women may have less feeling and dryness. This is rarely raised by patients, so ask about it directly.
What can help
- Medicines for erections
- Lubricants and counselling
Walking and sitting
Losing the upper nerves weakens the calf, so the step feels flat. A foot support and physiotherapy help. Numb skin over the buttocks needs daily checks for pressure sores.
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Beyond the operation
What does nerve loss cost a family after discharge?
The bill for the operation is only the start. Nerve loss brings running costs that continue at home, and families are rarely told about them in advance.
Supplies that continue
Catheters, gloves, bowel medicines, suppositories, washout kits and pressure cushions are bought month after month. If a stoma is made, bags and skin care follow. Ask the team for a written list, so you can check prices and stock before discharge.
Time and care
Someone usually needs to help at home for the first months, with catheter care, bowel routines and trips to physiotherapy. For a working son or daughter, that means planning leave. Travel from a district town for follow-up adds to it.
What schemes may cover
Aarogyasri, CGHS, ECHS, EHS and cashless insurance usually cover the operation and the hospital stay. Supplies after discharge are often outside the package. Check with your scheme desk or insurer which items are included, and keep every bill.
No figure on this page is a quote. Ask for a written estimate that lists supplies and physiotherapy separately.Over time
Does any function come back after the operation?
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The first days
A catheter stays in the bladder. Swelling and bruising around the nerves that were kept can make function look worse than it will be.
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Before going home
The catheter is taken out and the team checks how much urine is left in the bladder. You or a family member learn catheter care and a bowel routine.
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The first months
Nerves that were stretched but not cut can slowly recover. Some people find they need the catheter less often as the months pass.
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Around a year
Most of whatever recovery is coming has usually happened by now. What remains is likely to stay, and routines become part of ordinary life.
Commonly believed
What do families often believe about nerve loss?
When a nerve runs through the tumour, keeping it usually means leaving tumour behind. The decision is about control of the disease, not effort or skill in theatre.
Many people who use a catheter routine walk, travel and go back to work. It takes a few minutes, several times a day, and can be done discreetly.
Radiotherapy after tumour is left behind does not make up for a complete removal in most cases. That trade is sometimes chosen, but it should be a clear decision made with the team.
It is part of the consent conversation, at any age. Knowing what may change lets you plan, and help exists for most of the changes.
Before you sign
What should you ask about the nerves before giving consent?
- Which nerves does the tumour touch on my MRI?
- Which ones do you expect to keep, and on which side?
- What will my bladder, bowel and sexual function likely be?
- Will my walking change, and will I need a support?
- What would change if some tumour was left to keep a nerve?
- Who will teach us catheter care and a bowel routine?
Questions we are asked
Common questions about nerve sacrifice
Will I definitely lose bladder control?
Not definitely. It depends on which middle sacral nerves are kept and on how many sides. With those nerves kept on both sides, many people keep useful control. With them lost on both sides, most need a catheter routine. Your surgeon can tell you which situation is likely for you.
Can the cut nerves be repaired or joined later?
Generally not in a way that brings back bladder or bowel control. Nerves that were stretched but not cut can recover slowly. Research into nerve transfers and stimulators continues, but it is not routine, and you should ask your team what is realistic.
Is self-catheterisation painful or risky?
It is usually uncomfortable at first rather than painful, and becomes routine quickly. The main risk is urine infection, which clean hands, the right catheter and enough water reduce. A nurse teaches you or a family member before you go home.
Will I need a colostomy bag?
Not usually. Most people manage with a planned bowel routine. A stoma is made if the rectum has to be removed with the tumour, or later if a routine does not work well enough. Ask before the operation whether a stoma is part of the plan.
Can I still have children?
Possibly, but erection and ejaculation can be affected in men, and radiotherapy near the pelvis can affect fertility in both men and women. If children matter to you, ask about sperm or egg storage before treatment starts, when there is still time to arrange it.
Will I be able to walk normally?
Most people keep the nerves that power the thigh and hip, so they walk again. If the upper sacral nerves are lost, the calf is weaker and the step feels flat. A foot support, a stick and physiotherapy help many people walk without assistance over time.
Does insurance pay for catheters and bowel supplies?
The operation and stay are usually covered by Aarogyasri, CGHS, ECHS, EHS or cashless insurance. Supplies used at home often are not. Ask your scheme desk or insurer in writing which items are included, and whether a doctor's letter helps with any reimbursement.
Can I decide not to have the nerves removed?
Yes. The choice is yours, and some people accept a higher chance of the tumour coming back to keep function. Your team should explain clearly what that trade means for your tumour. Take the time you need, and bring your family into that conversation.
What moves the figure
What affects the cost
Four things change the total more than anything else.
The technique used
A shaped or image-guided delivery costs more than a conventional one, and is chosen on clinical grounds rather than preference.
How many sessions
The total is driven by the number of sittings or cycles, not by a single per-visit figure.
Supporting tests
Scans, blood work and pathology done alongside treatment are billed separately.
Your cover
Aarogyasri, CGHS, ECHS, EHS or cashless insurance usually change the out-of-pocket figure substantially.
Paying for it
Insurance, schemes and payment
What you actually pay usually differs a great deal from the sticker figure.
Accreditation and empanelment
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- ISO 9001:2015
- ArogyaSri empanelled
- CGHS accepted
- ECHS accepted
- EHS accepted
- Major cashless insurers
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Dr. C. Raghavendra Reddy
MBBS(Gold Medal), DNB(General Medicine), DM(Medical Oncology)(Gold Medal)
Dr. Bharati Devi Gorantla
MBBS, MD(General Medicine), DM(Medical Oncology)(Adyar,Chennai), ECMO, MRCP SCE(UK)
Dr. Owais Mohammed
MBBS, MD (General Medicine), DrNB (Medical Oncology), ECMO, MRCP SCE (Medical Oncology) (UK)
Dr. Muralidhar Muddusetty
MBBS (AIIMS), MS (Surgery) (AIIMS), DNB (Surgical Oncology), MRCS (Edinburgh)
Dr. Vinay Mamidala
MBBS, MS(General Surgery), M.Ch(Surgical Oncology), FMAS, FARIS(Ongoing)
Dr. Vajja Sandeep Kumar
MBBS, MS (General Surgery), DrNB (Surgical Oncology), FALS Oncology
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Our centres in and around Hyderabad
Addressed by landmark, because that is how this city navigates. A surgical consultation can be booked at any of these centres through one helpline, and your team will tell you where the operation itself takes place.
Sources
- National Cancer Institute — Bone Cancer
- NHS — Urinary catheters
- NHS — Bowel incontinence
- Cancer Research UK — Bone cancer
This page is general information, not a prescription. Do not change or stop any treatment based on what you read here. If anything is worrying you, contact your own treating team — or call our helpline and we will help you reach the right specialist.
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