CION Cancer Clinics
Looking after a drain at home: a guide for families | CION Cancer Clinics
Caring for a drain at home comes down to four habits: wash your hands, keep the tube secured and the skin clean and dry, empty it exactly as the nurse showed you, and write down what comes out. Call the team the same day for fever, bleeding, a slipped tube or a sudden change in the fluid. This page walks the family carer through each step. CION Cancer Clinics’ surgical oncologists in Hyderabad can talk this through with you.
On this page
- How do you look after a drain at home?
- What does the daily drain routine look like?
- Which kind of drain has come home with you?
- How do you bathe, sleep and move with a drain?
- What do the words about your drain mean?
- What do families often get wrong about drains?
- Common questions about caring for a drain at home
The short answer
How do you look after a drain at home?
Keep the drain secured, keep the skin around it clean and dry, empty or drain it exactly as your team showed you, and write down what comes out. Call the team early if the amount or colour changes, the skin turns red, or the tube slips.
Why families are sent home with a drain
A drain is a thin, soft tube that lets fluid leave the body. After cancer surgery it clears fluid from the wound. Other drains remove fluid from around the lung or in the abdomen, or bile from a blocked liver duct. Going home with one is common. It means the team is happy for you to recover in your own bed while the drain does its job.
Who usually does the caring
Most often a family member. That person should be in the room when the nurse teaches drain care before discharge, and should try it once while the nurse watches. A phone video of the steps, taken with permission, is often more useful at home than any leaflet.
What this page cannot tell you
Drains differ. How often yours is emptied, how much fluid is expected, and when it comes out are set by your own team. Where your discharge instructions differ from this page, follow the instructions.
Every day
What does the daily drain routine look like?
Wash your hands first
With soap and water, every time, before and after touching the drain, the bag or the dressing. Most drain infections start from hands.
Look at the skin
Check where the tube enters. A little pinkness is usual. Spreading redness, heat, pus or a bad smell is not, and should be reported.
Empty and measure
Empty the bottle or bag the way you were shown, into a measuring container. Squeeze a bulb drain flat again before closing it, so it keeps its gentle suction.
Write it down
Note the time, the amount and the colour in a notebook. Take the notebook to every appointment. The team decides when the drain comes out partly from these numbers.
Not sure whether this applies to you?
Ask an oncologistKnow your drain
Which kind of drain has come home with you?
The discharge summary names it. Care differs slightly between them, so check which one you have.
Wound drain with a bulb or bottle
Placed during surgery, for example after breast or neck surgery. It collects fluid from under the wound into a squeezable bulb or small bottle that you empty.
Chest or abdominal drain
A pigtail or tunnelled drain for fluid around the lung or in the abdomen. Some are drained into a bottle on a schedule rather than continuously.
Drain only as much as your team told you at one time.Bile drain
Placed through the skin into the liver when a bile duct is blocked. The fluid is dark yellow or green. Some are flushed at home, only if you have been taught how.
Nephrostomy tube
Drains urine straight from a kidney into a bag. The bag must stay below the level of the kidney, including at night.
Watch for
- Little or no urine in the bag
- Pain in the side or back
There is a fever or shivering, the drain has fallen out or slid out partway, fresh bright red blood is coming through it, nothing drains when a lot usually does, the skin is spreading red or leaking pus, or there is new breathlessness or severe pain. If a drain falls out, cover the site with a clean dressing and press gently. Do not try to push it back in.
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Everyday life
How do you bathe, sleep and move with a drain?
Most people can wash, sleep and walk about with a drain in. The main rules are to keep the site dry and to stop the tube from being pulled.
Bathing
Ask whether you may shower. Many teams allow a quick shower with the dressing covered by a waterproof layer. Avoid soaking in a bucket bath or tub, and never let the site stay wet. Pat the dressing dry and change it if it gets damp.
Sleeping and clothes
Sleep on the side away from the drain, or on your back. Pin the bag or bulb to your clothing, or use a small cloth pouch, so its weight never hangs from the tube. Loose kurtas and front-opening shirts are easier than anything pulled over the head.
Moving about
Gentle walking helps recovery. Avoid lifting heavy things, and avoid stretching the arm on the drain side above your head until the team says it is fine. Loop a little slack in the tube and tape it to your skin.
Who needs extra help
A person living alone, with poor eyesight or with shaky hands may find drain care hard. Tell the team before discharge. A home nurse or a longer stay may be the safer plan.
On your discharge sheet
What do the words about your drain mean?
- Drain output
- The amount of fluid that comes out over a set time. This is the number you write down.
- Serous or straw-coloured
- Thin, pale yellow fluid. Usually expected as a drain settles.
- Serosanguinous
- Thin fluid tinged pink or light red with a little old blood. Common in the first days after surgery.
- Seroma
- A pocket of fluid that collects under the skin, sometimes after a drain is removed. It may need draining again.
- Exit site
- The point on the skin where the tube comes out.
- Stitch or securing device
- What holds the tube in place. Never cut or loosen it yourself.
Commonly believed
What do families often get wrong about drains?
Not usually. The drain is there because fluid is expected. What matters is a sudden change in amount or colour, not the amount on its own. Write it down and ask if you are unsure.
Anything put on the site can block it and carry germs in. Keep it clean and dry with the dressing your team gave you, and use nothing else unless they suggest it.
Never remove a drain at home. A drain that stops suddenly may be blocked or kinked. Check the tubing for a kink, then call the team.
Lying still for days raises the risk of clots and chest infection. Gentle walking around the house is almost always encouraged.
Questions we are asked
Common questions about caring for a drain at home
How often should the drain be emptied?
Follow the schedule your nurse gave you. Many wound drains are emptied a few times a day, or whenever the bulb or bottle is about half full. Chest and abdominal drains are often drained on set days only. If you have no written schedule, call the team and ask for one.
When will the drain come out?
When the amount of fluid has dropped enough for your team, which is why the daily record matters. Some wound drains come out within days or weeks. Long-term drains for fluid on the lung may stay much longer. Removal is done at the clinic or by a nurse, never at home by the family.
Does taking a drain out hurt?
Most people feel a brief pulling or stinging sensation as the tube slides out, and then it passes. The nurse may ask you to breathe out slowly while it is removed. Ask whether to take your usual pain tablet beforehand, rather than deciding on your own.
The fluid has turned cloudy. Is that a problem?
Cloudy, thick or bad-smelling fluid can be a sign of infection, especially with a fever. Call the team the same day and describe the colour and smell. A photo of the bag or bulb, sent if they ask for it, can help them decide whether you need to come in.
Can I travel home to my district with a drain?
Often yes, if the team agrees. Carry spare dressings, bags, your record notebook and the discharge summary. Secure the drain well for a bumpy bus or car journey. Before leaving, find out which nearby hospital to go to if the drain slips or you develop a fever.
Should the dressing be changed every day?
Not always. Many dressings are left in place for several days unless they become wet, dirty or loose. Your nurse will tell you how often to change yours. If you do change it, wash your hands first and do not touch the part of the dressing that sits on the skin.
Can I eat normally with a drain in?
For most wound, chest and kidney drains, yes, unless the team has given you a special diet for another reason. Good food and enough fluid help healing. People with a bile drain may be given specific advice, so ask the team what applies to you.
Who do we call at night?
Ask for a number that is answered at night before you leave hospital, and write it on the front of the notebook. If you cannot reach anyone and there is fever, bleeding, breathlessness or severe pain, go to the nearest emergency department and take the discharge summary.
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Sources
- Macmillan Cancer Support — Cancer information and support
- Cancer Research UK — About cancer
- National Cancer Institute — NCI Dictionary of Cancer Terms
- American Cancer Society — Managing cancer side effects
This page is general information, not a prescription. Do not change or stop any treatment based on what you read here. If anything is worrying you, contact your own treating team — or call our helpline and we will help you reach the right specialist.
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Unsure about a drain at home?
Tell us what drain has been placed and what you are seeing. We will help you reach the right specialist. If there is fever, bleeding or breathlessness, go to the nearest emergency department first. One helpline serves every CION centre.