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How much is removed in a vulvectomy, and what is left | CION Cancer Clinics
For most women a vulvectomy removes only the part of the vulva where the cancer sits, with a rim of healthy skin, and the rest stays. Only a total radical vulvectomy removes the whole outer area, including the clitoris. The vagina, womb and bladder are never removed in this operation. This page goes part by part through what is usually taken, what the area looks like as it heals, and what to ask your surgeon. CION Cancer Clinics’ surgical oncologists in Hyderabad can talk this through with you.
On this page
- How much of the vulva is removed, and what is left?
- The parts of the vulva, and whether each is usually removed
- What each operation removes, and what stays
- What does the area look like afterwards?
- How the appearance changes as it heals
- Four things families tell us, and what is actually true
- What this page cannot tell you, and what to ask
- Common questions about what a vulvectomy removes
The short answer
How much of the vulva is removed, and what is left?
For most women, only the part of the vulva where the cancer sits is removed, with a rim of healthy skin around it, and the rest stays. Only a total radical vulvectomy removes the whole outer area, including the clitoris, and that is reserved for large or widespread cancers. The vagina, the bladder and the womb are not removed in any vulvectomy.
What decides the amount
Three things: how wide the cancer is, how deep it goes, and where on the vulva it sits. The surgeon needs a margin of normal-looking skin around the growth, because cancer cells can sit just beyond what the eye can see. A small cancer on the outer lip can be removed with very little change. A cancer sitting on the clitoris or close to the opening of the urethra needs the same margin, and that means more visible change.
Ask for a diagram at the consultation. It answers this question better than words do.Part by part
The parts of the vulva, and whether each is usually removed
Which of these is taken depends entirely on where the cancer sits. The surgeon removes what the margin needs and keeps the rest.
The outer lips (labia majora)
The fleshy outer folds. The most common site for vulval cancer, and the part most often removed on one side. Removing one outer lip changes the look but usually not how the area works.
The inner lips (labia minora)
The thinner inner folds. Often removed together with the outer lip on the same side when the cancer sits between them. Losing them changes the appearance more than the function.
The clitoris
Kept whenever the margin allows. It is removed when the cancer sits on it or very close to it, and in a total radical vulvectomy. This is the part whose loss most changes sensation, so ask about it directly.
The openings of the urethra and vagina
Not removed. If the cancer sits very close to the urine opening, a small part of the urethra may be shortened, which can change the direction of the stream. The vagina itself stays.
The perineum
The skin between the vagina and the back passage. Removed when the cancer sits low on the vulva. This is the area where wounds are slowest to heal, because it is under tension when you sit.
Not sure whether this applies to you?
Ask an oncologistBy operation
What each operation removes, and what stays
Appearance
What does the area look like afterwards?
After a wide local excision, the area looks much as before once healed, with a scar and one lip a little smaller. After a partial vulvectomy, one side looks flatter than the other. After a total radical vulvectomy the outer area is flat, with a scar running around the vaginal opening, and the folds are gone.
Scars in this area
The skin of the vulva heals with softer, less visible scars than skin elsewhere, and the scar fades over months. Where a flap of skin has been brought in from the thigh or buttock, that patch keeps the colour and hair of where it came from, so it looks and feels slightly different from the skin around it.
Sensation and function
Skin that has been cut is numb at first and regains some feeling over months, though rarely all of it. If the clitoris is kept, sexual sensation is usually preserved. If it is removed, that sensation changes, and it is honest to say so before the operation rather than after. Passing urine can spray sideways for a while if the urethra was close to the wound.
There is a separate page on sex and sensation after vulvectomy, and one on appearance and body image.Leave a number, we will call you
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Over time
How the appearance changes as it heals
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The first days
Swollen, bruised and held together with stitches. It looks worse than the final result, and the nurses expect that. A catheter drains urine so nothing runs across the wound.
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The first weeks
Swelling settles and the stitches dissolve. Small gaps can open along the wound, especially near the back passage. They fill in from below and do not usually need re-stitching.
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Around the first month
The wound has usually closed. The area is pink, firm and still tender. Sitting for long is uncomfortable. This is the point at which most women first look properly, and it is normal to find that hard.
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The following months
The scar softens and fades, the firmness eases, and some feeling returns to the skin. The shape you see at this stage is close to the final one.
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A year on
Scars are usually pale and soft. What was removed does not grow back, but the area is no longer sore. If you are unhappy with the shape, reconstruction can sometimes be discussed at this stage.
Commonly believed
Four things families tell us, and what is actually true
A vulvectomy removes outer skin and tissue only. The vagina, the womb and the bladder stay. Removing those is a different, much larger operation, and it would be named clearly on the consent form.
The bladder and the urethra are not removed. For a while the stream can spray or go sideways because the skin around the opening has changed, and sitting further back on the toilet helps. Not being able to pass urine at all is a reason for same-day care, not something to expect.
The aim is a clear margin, and the smallest operation that reliably gives one. Removing more than the margin needs adds wound problems and loss of sensation without taking out any more cancer.
After a small excision, that is close to true. After a radical vulvectomy the change is visible to you and to a partner, and pretending otherwise leaves women unprepared. Seeing a diagram or a photograph beforehand, if you want to, makes the first look easier.
Being straight with you
What this page cannot tell you, and what to ask
This page cannot tell you what your operation will remove. That depends on the size, depth and position of your cancer, and the surgeon may not know the exact edges until the operation itself. It also cannot tell you how you will feel about the change; women vary widely, and both distress and relief are normal.
Questions worth asking
Which parts will be removed, drawn on a diagram. Whether the clitoris will be kept. Whether the wound will be closed directly or with a flap. What the area is likely to look like at a month and at a year. Whether reconstruction is possible later, and who would do it. Whether you can talk to a counsellor before the operation.
Whether to have the operation, and which one, is a decision between you and your treating team. This page gives you the questions.Questions we are asked
Common questions about what a vulvectomy removes
Will I still have a vaginal opening?
Yes. The vagina is not removed in any type of vulvectomy, and the opening stays. After a large operation the skin around it is flatter and the opening can feel tighter as the scar forms. Gentle stretching, once healed, is sometimes advised, and the team will tell you if it applies to you.
Does the removed tissue grow back?
No. Skin heals across the gap, but the folds that were removed do not return. What does change is how the area looks and feels as the scar softens over months.
Will there be hair in the area afterwards?
On skin that was left, yes, as before. On a scar, no. If a flap was brought in from the thigh or buttock, it carries the hair pattern of where it came from, which can mean hair in a place you did not have it before, or none where you did.
Will the change be obvious to my husband?
After a small excision, usually not. After a partial or radical vulvectomy, yes, the shape is different and it is better that he knows before rather than discovers it. A counsellor can see you both together if that would help.
Can the surgeon decide to remove more during the operation?
Sometimes, if the cancer turns out to be wider than it looked. The consent form usually covers this, and the surgeon should tell you beforehand what the range might be. Ask directly what the most that could be removed is, so nothing comes as a surprise afterwards.
Why is my operation bigger than someone else's with the same stage?
Usually because of position. A cancer of the same size near the clitoris or the urethra needs the same margin as one on the outer lip, but there is less room, so more visible tissue goes. Stage describes depth and spread; it does not describe where the cancer sits.
Can I see a photograph of what it will look like?
You can ask. Many surgeons have diagrams and some have photographs of healed results, shown with the earlier patient's permission. Some women want to see them and some do not; both are reasonable. Nobody will show you anything you have not asked to see.
Is reconstruction done at the same time or later?
Both happen. A flap to close a wide wound is done in the same operation. Reshaping for appearance is more often discussed once everything has healed and the pathology is known. Ask whether a plastic surgeon is part of your team and when you could meet them.
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Sources
- Cancer Research UK — Surgery for vulval cancer
- Macmillan Cancer Support — Vulval cancer
- American Cancer Society — Surgery for vulvar cancer
- NHS — Vulval cancer
This page is general information, not a prescription. Do not change or stop any treatment based on what you read here. If anything is worrying you, contact your own treating team — or call our helpline and we will help you reach the right specialist.
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Send us the biopsy report and the consent form, or call the helpline. A surgical oncologist will go through it with you, part by part. One helpline serves every CION centre.