CION Cancer Clinics
How much of the tongue can be removed? | CION Cancer Clinics
Anything from a small piece to the whole tongue can be removed, but for most people it is a piece from one side. The amount is not chosen in advance. It is whatever it takes to remove the cancer with a rim of healthy tissue around it. This page explains what sets the amount, how surgeons check they have taken enough, and what your own surgeon has to tell you. CION Cancer Clinics’ surgical oncologists in Hyderabad can talk this through with you.
On this page
- How much of the tongue can be removed?
- What decides how much has to come out?
- How does the surgeon know enough has been taken?
- What do the margin words on the report mean?
- What do families believe about the amount removed?
- What should you ask about the amount?
- What can this page not tell you?
- Common questions about how much tongue is removed
The short answer
How much of the tongue can be removed?
Anything from a small piece to the whole tongue can be removed. The amount is not chosen in advance. It is whatever it takes to remove the cancer with a rim of healthy tissue all round it, and for most people that is a piece from one side, not the whole tongue.
Why the amount is bigger than the ulcer
The ulcer or lump you can see is only the surface. Underneath, the cancer grows down into the muscle and along its fibres. The surgeon removes a margin (a border of normal-looking tissue) around and below the cancer, so the piece taken out is wider and deeper than what you noticed.
How much can go and still leave a working tongue
People manage well after losing a surprising amount. After a partial glossectomy, most speak and eat by mouth again. After half the tongue is removed, a flap and therapy let many people be understood clearly. When the whole tongue goes, speech and swallowing become much harder, and that is only done when nothing smaller would remove the cancer.
Why the neck may be part of the plan
The amount removed from the tongue is only one part of the operation. Tongue cancer can travel to the lymph nodes (small glands) in the neck before anything can be felt there. When the cancer is deep, or a scan shows a suspicious node, the surgeon often removes neck nodes in the same operation. That does not change how much tongue is taken, but it does add a neck scar and a longer recovery.
What the surgeon measures
What decides how much has to come out?
Your surgeon builds the plan from these, using your examination, biopsy and scans.
Width of the cancer
A cancer confined to one side edge can often come out as a piece. One that crosses the groove down the middle of the tongue needs more.
Depth into the muscle
A deeper cancer needs more tissue removed below it. Depth also makes it more likely that the neck is treated at the same time.
Front or back of the tongue
The back of the tongue sits in the throat, and removing it affects swallowing more. Cancers here are harder to reach and plan.
What lies next to it
If the cancer touches the floor of the mouth or the jawbone, part of those may come out too, which widens the operation.
Your surgeon will look at
- An MRI or CT scan
- The biopsy report
- Examination by feel
Not sure whether this applies to you?
Ask an oncologistBefore, during and after
How does the surgeon know enough has been taken?
Planning from the scan
An MRI or CT shows how wide and deep the cancer runs. The surgeon marks out the planned cut with a margin added on every side.
Feeling the tongue
Under anaesthetic, the surgeon feels the tongue carefully, because the hardness of cancer often runs further than the surface shows.
Checking edges during surgery
In many centres, small pieces from the edges are checked under a microscope while you are still asleep. If cancer is found at an edge, more is taken there. Ask your centre whether they do this.
The final report
Several days later the pathologist reports on every edge. This is the final word on whether the margin was clear.
On your report
What do the margin words on the report mean?
- Clear margin
- No cancer cells were found near the edge of the removed tissue.
- Close margin
- No cancer at the edge, but it came nearer than the team would like. Further treatment may be discussed.
- Involved or positive margin
- Cancer cells reach the edge. Another operation or radiotherapy is usually discussed.
- Frozen section
- A quick check of tissue under the microscope during the operation, before the full report.
- Depth of invasion
- How far down into the muscle the cancer grew.
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Commonly believed
What do families believe about the amount removed?
Taking too little leaves cancer at the edge, and that usually means more treatment later. A better question is what the plan is if the edges are not clear.
Removing far more than needed does not add safety. It only makes speech and swallowing harder. The aim is a clear margin, not the largest operation.
Most people with half the tongue removed return to eating by mouth, often a softer diet at first, with help from a swallowing therapist.
The surgeon can give a plan and a likely range. The final amount may change in theatre if the cancer runs further than the scan showed.
Before the consent appointment
What should you ask about the amount?
- Roughly how much of my tongue will be removed, and from which part?
- Will the neck be operated on as well?
- Will the gap be stitched or rebuilt with a flap?
- Could you need to take more once the operation starts?
- Are the edges checked during the operation?
- What will speech and eating be like for this amount?
Being straight with you
What can this page not tell you?
This page cannot tell you how much of your own tongue will be removed. Only your surgeon, with your scans and biopsy, can give you that, and even then it is a plan rather than a promise. It also cannot tell you whether surgery is right for you. That decision belongs to your treating team.
Who surgery may not suit
If the cancer cannot be removed with a clear margin, or the amount needed would leave too little to swallow safely, or a person is too unwell for a long anaesthetic, the team may discuss radiotherapy with or without chemotherapy instead.
Why the report can change the plan
Even after a well-planned operation, the final report sometimes shows a close margin or cancer in the neck nodes. That does not mean the surgery failed. It means the team now has the information to decide whether more treatment is needed.
If the amount you have been told keeps you awake at night, write down what frightens you most and take the list to the next appointment. Surgeons would rather answer it than have you guess.Questions we are asked
Common questions about how much tongue is removed
Can you live without a tongue?
Yes. After a total glossectomy, a flap fills the mouth, and people learn new ways to speak and swallow with long therapy. Speech is much harder to understand, and some people need a feeding tube for a long time. It is a life-changing operation, which is why it is only done when nothing smaller would work.
Why is the surgeon removing so much for a small ulcer?
Because the ulcer is only the part you can see. The cancer grows beneath it into the muscle, and a margin of healthy tissue must come out too. If the amount still feels large, ask the surgeon to show you on the scan why that size is needed.
Does the amount removed decide whether I speak well?
It is one of the biggest factors, along with which part is removed and how the gap is rebuilt. Losing the front or side of the tongue affects some sounds. Losing the back affects swallowing more. Speech therapy makes a real difference whatever the amount.
Will the tongue grow back?
No. Tongue muscle that is removed does not grow back. What happens instead is that the remaining tongue adapts and learns new movements, and a flap, if used, fills the space. The wound heals and the swelling settles, so the mouth feels more normal over the following months.
What if the edges are not clear after surgery?
The team will discuss the options with you. These may include a second, smaller operation to remove more tissue at that edge, or radiotherapy, sometimes with chemotherapy. What is right depends on how close the cancer came and your general health.
Is a flap needed if only a little is removed?
Usually not. A small gap can be stitched closed or left to heal on its own. A flap is used when stitching would pull the tongue tight and stop it moving freely. Your surgeon decides this based on the size and shape of the gap.
Can the amount be reduced with chemotherapy first?
Sometimes chemotherapy before surgery is discussed for larger cancers, but it does not always shrink the amount that must be removed. The surgeon may still need to remove the area where the cancer first was. Ask your team whether this is being considered and why.
Should I get a second opinion on the amount?
If you are unsure, a second surgeon looking at the same scans and biopsy is reasonable, and should not delay treatment by long. Take every report and scan with you. Call the helpline and we can help you arrange a surgical oncologist review.
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Dr. C. Raghavendra Reddy
MBBS(Gold Medal), DNB(General Medicine), DM(Medical Oncology)(Gold Medal)
Dr. Bharati Devi Gorantla
MBBS, MD(General Medicine), DM(Medical Oncology)(Adyar,Chennai), ECMO, MRCP SCE(UK)
Dr. Owais Mohammed
MBBS, MD (General Medicine), DrNB (Medical Oncology), ECMO, MRCP SCE (Medical Oncology) (UK)
Dr. Muralidhar Muddusetty
MBBS (AIIMS), MS (Surgery) (AIIMS), DNB (Surgical Oncology), MRCS (Edinburgh)
Dr. Vinay Mamidala
MBBS, MS(General Surgery), M.Ch(Surgical Oncology), FMAS, FARIS(Ongoing)
Dr. Vajja Sandeep Kumar
MBBS, MS (General Surgery), DrNB (Surgical Oncology), FALS Oncology
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Sources
- Cancer Research UK — Mouth and oropharyngeal cancer
- NHS — Mouth cancer: treatment
- National Cancer Institute — Lip and oral cavity cancer treatment (PDQ), patient version
- American Cancer Society — Oral cavity and oropharyngeal cancer
This page is general information, not a prescription. Do not change or stop any treatment based on what you read here. If anything is worrying you, contact your own treating team — or call our helpline and we will help you reach the right specialist.
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Send us your biopsy report and scans, or call the helpline. A surgical oncologist will go through the plan with you. One helpline serves every CION centre.