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Post-thoracotomy pain syndrome: when chest pain does not settle | CION Cancer Clinics
Post-thoracotomy pain syndrome is pain along the scar that carries on, or comes back, months after open chest surgery. It is mostly nerve pain from the nerves under the ribs that were stretched during the operation. It often burns, shoots or tingles. It is not in itself a sign the cancer has returned, and it can be treated. This page explains what it feels like and what helps. CION Cancer Clinics’ surgical oncologists in Hyderabad can talk this through with you.
On this page
- What is post-thoracotomy pain syndrome?
- What does post-thoracotomy pain feel like?
- Why does pain carry on after a thoracotomy?
- How is long-lasting chest pain treated?
- Is it normal healing pain or nerve pain?
- What do people wrongly believe about pain that lasts?
- Common questions about chronic pain after a thoracotomy
The short answer
What is post-thoracotomy pain syndrome?
Post-thoracotomy pain syndrome is chest pain that carries on, or comes back, along the scar months after open chest surgery, long after the wound itself has healed. It is mostly nerve pain, and it can be treated, even when it cannot always be switched off completely.
How it differs from ordinary healing pain
Pain in the weeks after a thoracotomy is expected, and it should ease steadily. In this syndrome the pain stops improving, or it changes character. It starts to burn, shoot or tingle, and ordinary things like a shirt brushing the skin can hurt.
How common it is
It is one of the more common long-term effects of open chest surgery. Many people have some lingering discomfort or numbness. A smaller group have pain strong enough to affect sleep, work or mood. Keyhole surgery seems to lead to it less often, but it can still happen after VATS.
What it is not
Lingering pain after surgery is not, on its own, a sign that the cancer has come back. It is also not something you simply have to put up with. It deserves the same attention as any other symptom after your operation.
Recognising it
What does post-thoracotomy pain feel like?
People describe it in different ways. You may have one of these or several at once.
Burning or shooting pain
A hot, electric or stabbing feeling along the scar or following the line of a rib around towards the front of the chest.
Numb but painful skin
A patch that feels dead to the touch, yet aches or burns underneath. This mix is typical of nerve pain.
Pain from light touch
Clothes, a bra strap, a seat belt or bed sheets can hurt, even though they should not. Doctors call this allodynia.
Deep aching and tightness
A band-like ache in the chest wall, sometimes spreading to the shoulder blade or shoulder.
Often worse with
- Cold weather
- Lifting or twisting
- Long days and poor sleep
Not sure whether this applies to you?
Ask an oncologistThe cause
Why does pain carry on after a thoracotomy?
The main cause is injury to the nerves that run under each rib, called the intercostal nerves. During open surgery the ribs are gently spread apart to reach the lung. The nerves get stretched, pressed or caught in stitches, and sometimes a rib cracks.
When a nerve heals badly
Most stretched nerves recover. Some heal in a disordered way and keep sending pain signals even though there is no fresh damage. Over time the nervous system can become more sensitive, so the pain feels larger than the injury that started it.
Who seems more likely to get it
Studies point to some patterns, though none of them decide it for any one person. Severe pain in the first days after surgery is the clearest link. Other factors include open rather than keyhole surgery, pain problems before the operation, younger age, and anxiety or low mood. Radiotherapy or chemotherapy afterwards can add to nerve irritation.
This is one reason good pain relief straight after the operation matters. It is not only about comfort in hospital.What this page cannot tell you
It cannot tell you whether your own pain is this syndrome, or how long it will last for you. Only an examination can separate nerve pain from a wound, rib or lung problem. Nor can it choose a medicine for you. Those decisions belong to the doctor who assesses you.
Treatment
How is long-lasting chest pain treated?
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A proper check first
Your surgical team makes sure nothing else is causing the pain, such as a wound problem, a rib fracture, infection or a change on a scan.
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Medicines for nerve pain
These are different from ordinary painkillers. Pregabalin, gabapentin, amitriptyline or duloxetine are commonly tried. They take time to work and the dose is built up slowly by your doctor.
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Skin patches and creams
A numbing lidocaine patch or a capsaicin preparation over the painful area can help some people without adding tablets.
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Nerve blocks and pain-clinic procedures
An injection of numbing medicine and sometimes a steroid near the affected nerves. Relief varies from person to person.
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Physiotherapy and coping support
Gentle exercise for the chest wall and shoulder, a TENS machine, and help with sleep, mood and pacing. These matter as much as tablets.
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Is it normal healing pain or nerve pain?
Commonly believed
What do people wrongly believe about pain that lasts?
Lasting pain comes from the nerves in the chest wall, not from whether the tumour was removed. The pathology report and your follow-up scans answer that question separately.
Nerve pain can be severe even when the skin looks perfect. A healed scar tells you nothing about the nerve beneath it. Believing the person, and getting it assessed, is the first step.
Some of these medicines were first used for other conditions, but they calm overactive pain nerves. Being offered one does not mean anyone thinks the pain is in your head.
It cannot always be removed completely, but most people get meaningful relief from a mix of treatments. A pain clinic review is worth asking for.
Do not assume every chest pain after surgery is the syndrome. Go to the nearest emergency department the same day for sudden or crushing chest pain, pain with breathlessness, sweating or pain spreading to the arm or jaw, or coughing up blood. Contact your surgical team soon if the pain is new, steadily worsening, wakes you at night, or comes with weight loss or a new lump. Do not simply take more painkillers and wait.
Questions we are asked
Common questions about chronic pain after a thoracotomy
How long does chronic pain after a thoracotomy last?
It varies widely. For some people it slowly fades over the first year or so. For others it lasts longer and becomes something to manage rather than wait out. This page cannot predict your own course. Your pain team can tell you more once they have assessed the pain and seen how it responds to treatment.
Who should I see about it?
Start with your surgical team, who will check the wound and rule out other causes. They may refer you to a pain clinic, where anaesthetists and physiotherapists specialise in long lasting pain. Bring a note of what the pain feels like, when it is worse and what you have tried.
Could the pain mean the cancer has come back?
Most lasting pain along a thoracotomy scar is nerve pain, not cancer. That said, new pain that keeps worsening, pain at night, or pain with weight loss or a cough should be checked. Your team may arrange a scan to be sure. Ask them directly. It is a reasonable worry to raise.
Are nerve pain medicines safe to take for a long time?
Many people take them for months under medical supervision. They can cause drowsiness, dizziness or weight gain, and some must not be stopped suddenly. Your doctor sets the dose and how to reduce it. Do not stop, start or change these medicines on your own.
Can I work and do housework with this pain?
Most people can, with some changes. Heavy lifting, twisting and long periods in one position often make it worse. Pacing the day, taking short breaks and building activity back gradually helps. A physiotherapist can suggest ways to manage your own job or household tasks.
Does yoga, massage or oil help?
Gentle stretching, breathing practice and relaxation can ease tension and help sleep. Keep massage gentle, and avoid rubbing hard over a sensitive scar. Tell your doctor before trying ayurvedic or herbal products, because some interact with other medicines. None of these should replace an assessment.
Does it affect sleep and mood?
Often, yes. Pain that does not go away can cause poor sleep, irritability and low mood, and those in turn make pain feel worse. Say so at your appointment. Help with sleep and mood is a proper part of treating the pain, not a separate problem.
Is pain-clinic treatment covered by schemes or insurance?
It depends on the scheme and the treatment. Aarogyasri, CGHS, ECHS, EHS and cashless insurance may cover some consultations, procedures or medicines. Ask the billing desk or your insurer before a procedure, and keep all prescriptions and reports together for any claim.
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Dr. Owais Mohammed
MBBS, MD (General Medicine), DrNB (Medical Oncology), ECMO, MRCP SCE (Medical Oncology) (UK)
Dr. Muralidhar Muddusetty
MBBS (AIIMS), MS (Surgery) (AIIMS), DNB (Surgical Oncology), MRCS (Edinburgh)
Dr. Vinay Mamidala
MBBS, MS(General Surgery), M.Ch(Surgical Oncology), FMAS, FARIS(Ongoing)
Dr. Vajja Sandeep Kumar
MBBS, MS (General Surgery), DrNB (Surgical Oncology), FALS Oncology
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Sources
- Cancer Research UK — Surgery for lung cancer
- Cancer Research UK — Cancer and pain control
- NICE — Neuropathic pain in adults: pharmacological management (CG173)
- Macmillan Cancer Support — Lung cancer
This page is general information, not a prescription. Do not change or stop any treatment based on what you read here. If anything is worrying you, contact your own treating team — or call our helpline and we will help you reach the right specialist.
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