CION Cancer Clinics
How to build your family tree before a genetics appointment | CION Cancer Clinics
A drawn family tree shows a counsellor patterns a spoken history hides. Mapping three generations on both sides, including relatives who never had cancer, gives the clearest starting picture. This page explains what to include, how to gather it, and why an unfinished tree is still worth bringing. At CION Cancer Clinics in Hyderabad, our oncologists review your family history with you and guide you to the right genetic counselling and testing.
On this page
- Why does a genetic counsellor want a family tree, not just a story?
- What should the tree actually cover?
- How do you actually put one together before the appointment?
- Words used when drawing a family tree
- A spoken history vs a drawn family tree
- What people assume about building a family tree
- What this page cannot tell you
- Common questions about building a family tree
The short answer
Why does a genetic counsellor want a family tree, not just a story?
Because a spoken family history leaves out details that change the whole picture, and a drawn tree makes gaps and patterns visible at a glance. A counsellor reads shapes on that tree the way a radiologist reads a scan.
What a tree captures that conversation misses
Who was diagnosed, at what age, with what exact cancer, and on which side of the family, all sit on the tree together. Said aloud, these details blur; drawn out, a pattern of young diagnoses on one side of the family becomes obvious immediately.
You do not need to be exact to start
Approximate ages and best-guess relationships are still useful. A counsellor will help fill gaps and flag anything worth confirming later. Waiting until you have perfect information before booking an appointment only delays a conversation that can start productively today. Families often spend weeks trying to track down an exact age or diagnosis before calling anyone, when a rough version handed over at the first visit would have moved things along just as well.
Why this step comes before any discussion of testing
A counsellor cannot judge whether testing is worth considering without first seeing the shape of the family. A tree that looks ordinary can rule testing out quickly, saving a family the cost and wait of a test that was never going to change anything. A tree that shows a real pattern does the opposite, and moves the conversation toward testing sooner rather than later.
Three generations is usually enough: yourself, your parents and their siblings, and your grandparents.What to map
What should the tree actually cover?
Aim for breadth before detail. A wide, rough tree is more useful than a narrow, perfect one.
Both sides of the family
Cancer risk can come from either parent equally. Leaving out your father's side, which families often do without meaning to, is one of the most common reasons a pattern is missed.
Everyone, not only those affected
Relatives who never had cancer still matter on the tree, because the counsellor needs the full shape of the family to judge how strong a pattern really is.
Three generations where possible
Yourself and your siblings, your parents and their siblings, and your grandparents. Going further back helps but is not essential to get started.
Non-cancer causes of death too
Knowing a relative died young of something unrelated to cancer still matters, because it explains why a pattern might look incomplete rather than absent.
Not sure whether this applies to you?
Ask an oncologistGetting started
How do you actually put one together before the appointment?
Start with yourself and work outward
List your parents, then their siblings and your own siblings, then your grandparents. Draw it as simple boxes and lines; there is no need for special software.
Note cancer diagnoses as you go
Beside anyone diagnosed, write the type of cancer and their approximate age at diagnosis. Write "not sure" rather than guessing a specific figure you do not actually know.
Call relatives who might know more
An aunt or older cousin often remembers details that have not reached you directly. A short phone call before your appointment can fill real gaps.
Bring it as it is, unfinished
A counsellor expects an incomplete tree and will work with you to finish it. Do not delay booking an appointment while chasing every last detail.
On the page
Words used when drawing a family tree
- Pedigree
- The clinical term for a family tree drawn specifically to show patterns of illness across generations.
- Proband
- The person the tree is being built around, usually whoever is asking about testing or has been diagnosed.
- First-degree relative
- A parent, sibling or child. These relationships carry the most weight in a risk assessment.
- Second-degree relative
- A grandparent, aunt, uncle, niece, nephew or half-sibling. Still relevant, though somewhat less weighted than first-degree relatives.
- Consanguinity
- A marriage between blood relatives, noted on the tree because it can raise the chance of certain inherited conditions.
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Side by side
A spoken history vs a drawn family tree
Commonly believed
What people assume about building a family tree
A spoken summary and a drawn tree are read differently. Counsellors specifically ask relatives one by one because a general summary tends to miss details that matter.
A fault can be carried without ever causing cancer in that person. Leaving out a whole side of the family because it looks unremarkable is one of the most common ways a pattern is missed.
Approximate ages, or even "younger than most" and "older than most," are still useful. A counsellor can work with rough information far better than with none at all.
They carry less weight than close relatives but can still matter, particularly in smaller families where close relatives are few.
Being straight with you
What this page cannot tell you
It cannot tell you whether your particular family tree shows a concerning pattern. That judgment depends on the actual ages, cancer types and relationships involved, which only a counsellor reviewing your specific tree can assess properly.
It cannot replace calling relatives yourself
No template or checklist can recover information that only a family member remembers. The single most useful thing you can do before an appointment is have those conversations, even briefly, with an older relative. A short call to an aunt or an older cousin often surfaces a diagnosis nobody else in the immediate family knew about, and that one detail can change the whole assessment.
Who this does not apply to
If your family history is already well documented and was recently reviewed by a genetics clinic, you likely do not need to rebuild the tree from scratch. Bring the existing version instead.
An incomplete tree is still worth bringing. Do not wait until it feels finished.Questions we are asked
Common questions about building a family tree
Do I need special software to draw this?
No. Pen and paper, or a simple document with boxes and lines, works perfectly well. A counsellor will redraw it in clinical format during your appointment if needed.
How far back do I really need to go?
Three generations, including grandparents, is usually enough to start a meaningful assessment. Going further back is helpful but not essential for the first appointment.
What if I don't know a relative's exact age at diagnosis?
Write your best estimate, or a rough range, rather than leaving it blank. A counsellor can work with approximate information and will help you refine it later if needed.
Should I include cancers that were treated long ago and never came back?
Yes. Any past diagnosis is relevant to the pattern, regardless of how long ago it was or how well the treatment worked out.
What if a relative refuses to discuss their diagnosis?
Note what you already know and leave the rest blank rather than guessing. A separate page on this site covers what to do when family members will not share their history.
Do I need to include relatives by marriage?
Only blood relatives carry genetic weight on the tree, though noting a spouse can help keep the family structure clear for the counsellor reading it.
Can I update the tree after my first appointment?
Yes, and counsellors expect this. Trees are often revised over more than one visit as more family information comes to light.
Where can I get help actually building mine?
Bring whatever you have, even a rough draft, to a CION genetics appointment. Call the helpline to book one and a counsellor will help you complete it together.
Meet CION's oncologists. Bring your family history or genetic report to them.
Our medical oncologists see people with a strong family history of cancer, arrange genetic counselling and testing where it fits, and plan the checks that follow.
Dr. C. Raghavendra Reddy
MBBS(Gold Medal), DNB(General Medicine), DM(Medical Oncology)(Gold Medal)
Dr. Bharati Devi Gorantla
MBBS, MD(General Medicine), DM(Medical Oncology)(Adyar,Chennai), ECMO, MRCP SCE(UK)
Dr. Owais Mohammed
MBBS, MD (General Medicine), DrNB (Medical Oncology), ECMO, MRCP SCE (Medical Oncology) (UK)
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Sources
- GeneReviews (NCBI) — Genetic Counseling
- National Cancer Institute — Genetic Testing for Inherited Cancer Susceptibility Syndromes
- Cancer Research UK — Inherited cancer genes and increased cancer risk
- MedlinePlus Genetics — What does it mean to have a genetic predisposition to a disease?
This page is general information, not a prescription. Do not change or stop any treatment based on what you read here. If anything is worrying you, contact your own treating team — or call our helpline and we will help you reach the right specialist.
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Your tree does not need to be finished. Call and describe what you know so far, and we will help you book the right appointment. One helpline serves every CION centre.