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How to lower your risk of lymphoedema after a mastectomy | CION Cancer Clinics
Lymphoedema cannot always be prevented after a mastectomy, but you can lower the risk and catch it early. Keep the arm moving, protect the skin from cuts, burns and insect bites, keep your weight steady, and report any heaviness or swelling in the arm, hand or chest straight away. This page explains who is more at risk, which habits help and what to do if swelling starts. CION Cancer Clinics’ surgical oncologists in Hyderabad can talk this through with you.
On this page
The short answer
Can you prevent lymphoedema after a mastectomy?
You cannot remove the risk completely, but you can lower it and catch it early. Keep the arm moving, protect the skin from cuts and infection, keep your weight steady, and report any new swelling or heaviness in the arm, hand or chest as soon as you notice it.
What lymphoedema is
Lymph is a clear fluid that drains through small glands called lymph nodes. Many of the nodes that drain the arm sit in the armpit. When some are removed during breast surgery, or treated with radiotherapy, fluid can build up in the arm, hand, breast area or chest wall. That long-term swelling is lymphoedema.
When it can appear
It can start in the first months after surgery, but it can also appear years later. Many women never develop it at all. Because it is much easier to control when found early, the habits on this page are worth keeping for the long term, not only while the wound heals.
This page is general guidance. Your surgeon or lymphoedema therapist may give you different advice for your own situation, and theirs comes first.Who is more at risk
What makes lymphoedema more likely?
Your report and your surgeon can tell you which of these apply to you. None of them means swelling will happen.
How many nodes were removed
A sentinel node biopsy removes only the first one or few nodes. An axillary clearance removes many more. The more nodes taken, the higher the risk.
Radiotherapy to the armpit
Radiotherapy to the nodes adds to the risk, especially when it follows node surgery on the same side.
Weight gain
Being overweight at the time of surgery, or putting on weight afterwards, makes swelling more likely and harder to control.
Infection in the arm
A skin infection on the operated side can set off swelling or make existing swelling worse.
Common starting points
- Cuts while cooking or gardening
- Insect bites and scratches
- Cracked skin and torn cuticles
Not sure whether this applies to you?
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Which daily habits lower the risk?
- Do your arm exercises and keep the arm in normal daily use
- Wear gloves for cooking near flame, washing vessels and gardening
- Moisturise the hand and arm so the skin does not crack
- Clean any cut or bite straight away and watch it
- Use mosquito repellent or a net, especially at night
- Build up to heavy lifting gradually rather than all at once
- Keep bangles, rings and watches loose on that side
- Aim to keep your weight steady after treatment
If the arm, hand or chest on the operated side becomes red, hot, painful or suddenly more swollen, especially with a fever or shivering, it may be a skin infection called cellulitis. Contact your team or go to a hospital the same day and say you have had breast surgery. It usually needs antibiotics started quickly. Do not wait to see if it settles, and do not apply hot compresses or massage the arm.
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Catching it early
What are the early signs, and what do you do?
The earliest sign is often a feeling rather than something you can see. The arm feels heavy, full or tight, or a bangle, ring or blouse sleeve feels tighter on one side than the other. Some women notice swelling on the back of the hand, or an ache that comes and goes.
Tell your team early
Do not wait for the swelling to become obvious. Mention it at your next visit, or call if it is getting worse. The team may measure both arms and compare them. If lymphoedema is starting, a trained therapist can teach you gentle skin care, exercises and a special massage called lymphatic drainage.
About compression sleeves
A compression sleeve is a tight elastic garment that helps fluid move out of the arm. It must be measured and fitted properly. A badly fitting sleeve bought off the shelf can squeeze in the wrong place and make things worse. Do not start wearing one without advice from your team.
Swelling that appears long after treatment is usually lymphoedema, but new swelling should always be checked by a doctor to rule out other causes.Commonly believed
What do people believe about protecting the arm?
Avoiding use altogether can weaken the arm. Research suggests that strength exercise built up slowly, with guidance, does not raise the risk and may help. Heavy loads should be approached gradually.
The evidence here is thin. Many teams still suggest using the other arm when it is easy to do so. If both breasts were operated on, or a test must be done, it is not an emergency. Ask your own team.
Lymphoedema is a long-term condition, but it can usually be controlled well with skin care, exercise, massage and compression. The earlier it is treated, the easier that is.
Studies have not shown that air travel causes lymphoedema. If you already have swelling, ask your therapist whether to wear your sleeve on a long journey.
Being straight with you
What can this page not tell you?
It cannot tell you whether you will develop lymphoedema. That depends on your surgery, your radiotherapy and your own body, and even women with the same treatment have different outcomes. Doing everything on this page does not make it impossible, and developing it is not a sign that you did something wrong.
Questions to ask your team
Ask how many nodes were removed and whether radiotherapy to the armpit is planned. Ask whether they would like to measure your arms before and after treatment, so any change is noticed early. Ask who to call if the arm starts to feel heavy. Having those answers written down makes it easier to act quickly later.
If you live far from the hospital
Many women travel to Hyderabad from a district town for surgery and then go home. Before you leave, ask whether a trained lymphoedema therapist works nearer to you, and whether early swelling can be reviewed by video or by sending photographs. Keep your discharge summary with you. A local doctor treating an arm infection will need to know that nodes were removed on that side.
Questions we are asked
Common questions about lymphoedema after mastectomy
Will I definitely get lymphoedema after a mastectomy?
No. Many women never develop it. The risk is higher when many lymph nodes are removed from the armpit and when radiotherapy is given to that area. A mastectomy with only a sentinel node biopsy carries a lower risk. Your surgeon can tell you roughly where you stand.
Can I still wear glass bangles?
Loose bangles are generally fine. Glass can break and cut the skin, so some women switch to metal or thread on the operated side. If the bangles begin to feel tight or leave marks, take them off and tell your team, because that can be an early sign of swelling.
Can I cook and wash vessels as usual?
Yes. Using the arm normally is good for it. Wear rubber gloves for washing and take care near flames and hot oil, because burns and cuts can lead to infection. Clean any small injury straight away and watch it for redness over the next days.
Should I get my blood pressure checked on the other arm?
Many teams suggest using the other arm when that is easy, although the evidence that it matters is limited. If both sides were operated on, ask your team which arm to use. A single reading on the operated side is not a reason to panic.
Do I need to wear a compression sleeve to prevent it?
Not usually. Sleeves are mainly used when swelling has started, or in specific situations your therapist advises. A sleeve that does not fit properly can do more harm than good. Ask your team before buying one.
Is massage good for the arm?
A special gentle massage called lymphatic drainage can help once lymphoedema has started, when taught by a trained therapist. Firm oil massage, as often done at home, is different and may not help. Never massage an arm that is red, hot or painful.
Can lymphoedema start years later?
Yes. It can appear long after surgery and radiotherapy have finished. That is why the skin care and awareness habits on this page are worth keeping for life. Any new swelling in the arm, hand or chest should be reported, even many years on.
How can I help my mother protect her arm?
Take over the jobs most likely to cause cuts and burns in the first months. Keep a mosquito net or repellent in her room. Encourage her daily exercises and short walks. Most of all, notice if she mentions heaviness or tight bangles, and help her tell the team promptly.
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Sources
- National Cancer Institute — Lymphedema
- NHS — Lymphoedema
- American Cancer Society — Lymphedema
- Cancer Research UK — Surgery for breast cancer
This page is general information, not a prescription. Do not change or stop any treatment based on what you read here. If anything is worrying you, contact your own treating team — or call our helpline and we will help you reach the right specialist.
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