CION Cancer Clinics
Sexual function after a cystectomy in women | CION Cancer Clinics
Most women can have sex again after a radical cystectomy, once the wound has healed and the surgeon has said it is safe. It is usually different: the vagina may be shorter or drier, and if the ovaries are removed the menopause starts at once. A lubricant, patience, sometimes a dilator and a frank conversation with your team make most of the difference. This page explains what changes, what can be kept, and how to start again. CION Cancer Clinics’ surgical oncologists in Hyderabad can talk this through with you.
On this page
- Can a woman have sex after a cystectomy?
- What exactly changes after the operation?
- How do women usually start again?
- Standard cystectomy and organ-sparing cystectomy, compared
- Words you may see, in plain language
- Four things women tell us, and what is actually true
- What this page cannot tell you
- Common questions about sex after cystectomy in women
The short answer
Can a woman have sex after a cystectomy?
Yes, most women can have sex again after a radical cystectomy, once the wound has healed and the surgeon has said it is safe. It is usually different from before. The vagina may be shorter or narrower, it may be drier, and it can take patience, a lubricant and sometimes a dilator to make it comfortable.
Why the operation affects the vagina
The bladder sits directly in front of the vagina and the womb. A standard radical cystectomy removes the bladder and urethra, and often the womb, ovaries, tubes and a strip of the front wall of the vagina, because the cancer can reach them. The vagina is then closed and is a little shorter. The nerves that supply sensation and lubrication run along its sides and can be bruised or cut.
What organ-sparing means
In selected women the surgeon can leave the womb, the ovaries or the whole vagina in place. This keeps length, sensation and natural moisture, and it matters more if a neobladder is planned, because the womb helps support it. Whether it is safe depends on where the tumour sits, and it has to be discussed before the operation, not after.
This page is about women. The changes after cystectomy in men are different and have their own page.One by one
What exactly changes after the operation?
Not every woman has every change. It depends on what was removed, your age, and whether you had reached the menopause.
A shorter, narrower vagina
If part of the front wall was removed, the vagina is repaired and ends up shorter. Deep penetration can be uncomfortable at first. Different positions, going slowly and a dilator programme all help it stretch over time.
Dryness and sudden menopause
If the ovaries are removed before the natural menopause, periods stop at once and hot flushes, dryness and mood changes can follow quickly. Even after the menopause, nerve damage can reduce natural lubrication. A lubricant is the first step for almost everyone.
Sensation and orgasm
The clitoris is not removed, and most women can still reach orgasm. Some notice reduced feeling in the vagina, or that arousal takes longer, because of nerve bruising. This often improves over the first year.
Confidence and body image
A stoma, a scar and the fear of leaking or of smell can matter more than any physical change. This is common and it is not vanity.
Often helped by
- A stoma cover, a soft band or a short nightdress
- Emptying the bag or the neobladder beforehand
- A counsellor who has seen this before
Not sure whether this applies to you?
Ask an oncologistWhen you feel ready
How do women usually start again?
Wait for the check
Ask at a follow-up visit whether the vagina has healed. If you had a neobladder or a stoma, the surgeon will also want to know that it is settled. Do not go by a date you read online.
Start with a lubricant, and time
A water-based or silicone lubricant from any chemist, used generously. Start with touch and closeness rather than penetration, and choose a time of day when you have energy.
Use a dilator if advised
A smooth tube in graded sizes, used for a few minutes at a time, keeps the vagina from tightening and gently lengthens it. Your team or a pelvic floor physiotherapist will show you how. It is not needed by every woman.
Ask about vaginal oestrogen
A cream or pessary placed in the vagina can restore moisture and stretch. It is a prescription medicine, and whether it is suitable depends on your cancer and your history. Ask your oncologist rather than buying it yourself.
Say what hurts
Pain is not something to push through. Tell your team where it is and when. A change of position, a dilator or a physiotherapist often solves it.
Side by side
Standard cystectomy and organ-sparing cystectomy, compared
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Words you may see, in plain language
- Anterior exenteration
- The surgical name for the standard operation in women: removal of the bladder, urethra, womb, ovaries and the front wall of the vagina together.
- Vagina-sparing
- Leaving the whole vagina in place. Possible when the tumour is nowhere near the back wall of the bladder.
- Surgical menopause
- The menopause that starts on the day the ovaries are removed, rather than gradually. Symptoms are often stronger than a natural menopause.
- Dilator
- A smooth plastic tube, in graded sizes, used at home to keep the vagina open and comfortable after surgery or radiotherapy.
- Pelvic floor physiotherapy
- Exercises and hands-on treatment for the muscles under the pelvis. Helps with pain, tightness and, with a neobladder, with control.
Commonly believed
Four things women tell us, and what is actually true
For most women it is not. It changes, it needs a lubricant and patience, and it may need a dilator or a physiotherapist. Many couples find their way back to a close and comfortable sex life, often within the first year.
Surgeons often do not raise it with women, and women rarely raise it themselves. That silence is not a verdict. Ask before the operation what will be removed and what could be kept, and ask afterwards how to start again.
Once healed, neither is harmed by sex. A neobladder may leak a little at first, which emptying beforehand reduces. A stoma bag can be emptied, covered or changed for a small one. Nothing internal can be pushed out of place.
Bladder cancer is not driven by female hormones, so vaginal oestrogen is often acceptable. It is still a prescription decision, taken by your oncologist with your full history in front of them. Ask rather than assume either way.
Being straight with you
What this page cannot tell you
This page cannot tell you what will be removed in your operation, or what could be kept. That depends on where the tumour sits, how deep it goes, and what the scans show. Only your surgeon can say.
Who organ-sparing does not suit
It is usually not offered when the tumour is on the back wall or the neck of the bladder, has grown through the bladder wall, or is close to the womb or vagina. In those women, keeping the organs would risk leaving cancer behind, and removing the cancer comes first.
If you are young and want children
Removing the womb ends the chance of carrying a pregnancy. If that matters to you, say so before surgery, because egg or embryo freezing has to be arranged beforehand. It can only be discussed if you raise it.
Raising it is not embarrassing
You can ask to speak to a woman doctor or a counsellor, in Telugu, in private, with or without your husband present. Your daughter can ask on your behalf.
Bleeding from the vagina after sex, or pain that does not settle, should be reported to your team promptly rather than waiting for the next routine visit.Questions we are asked
Common questions about sex after cystectomy in women
How long after the operation can I have sex?
Once the vaginal repair and the diversion have healed and your surgeon has checked, usually at a follow-up visit in the weeks after surgery. Many women wait longer because of tiredness or worry, and that is fine. Start with closeness rather than penetration and use a lubricant from the first attempt.
Will sex be painful?
It can be at first, mainly from dryness and from a vagina that is shorter or tighter than before. A lubricant, different positions, a dilator programme and time usually settle it. Pain that continues is worth telling your team about, because a pelvic floor physiotherapist can often help.
Will I go through the menopause straight away?
If your ovaries are removed and you had not yet reached the menopause, yes, from the day of surgery. Hot flushes, dryness and mood changes can start within days. Tell your team, because there are ways to ease this, and ask before the operation whether the ovaries could be kept.
Can I still have an orgasm?
Most women can. The clitoris is not removed and its nerves are usually untouched. Some women find it takes longer, or that feeling inside the vagina is reduced, particularly in the first months. This tends to improve as nerves recover and as confidence returns.
Does having a stoma stop me having sex?
No. Empty the bag beforehand, use a cover, a small bag or a soft band, and choose positions that keep it out of the way. The stoma itself is not harmed by sex. Many women find the worry fades once their partner has seen it and nothing has gone wrong.
Is vaginal oestrogen cream safe after bladder cancer?
Often, because bladder cancer is not driven by female hormones. It is still a prescription medicine, and your oncologist will weigh your full history, including any breast or womb problems, before prescribing. Ask at follow-up rather than buying it over the counter.
Can I still have children afterwards?
Not if the womb is removed, which is usual in the standard operation. If you are young and want children, say so before surgery. Egg or embryo freezing may be possible, and in some women the womb and ovaries can be kept. None of this can be arranged afterwards.
Who can I talk to about this at CION?
Your surgical oncologist at any follow-up visit, or the counsellor, and you can ask for a woman doctor. You can call the helpline and ask for a private conversation in Telugu. Your daughter or husband can ask on your behalf if that is easier.
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Dr. Muralidhar Muddusetty
MBBS (AIIMS), MS (Surgery) (AIIMS), DNB (Surgical Oncology), MRCS (Edinburgh)
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MBBS, MS(General Surgery), M.Ch(Surgical Oncology), FMAS, FARIS(Ongoing)
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MBBS, MS (General Surgery), DrNB (Surgical Oncology), FALS Oncology
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Sources
- Cancer Research UK — Sex and bladder cancer
- Macmillan Cancer Support — Bladder cancer
- American Cancer Society — Bladder Cancer Surgery
- NHS — Menopause
This page is general information, not a prescription. Do not change or stop any treatment based on what you read here. If anything is worrying you, contact your own treating team — or call our helpline and we will help you reach the right specialist.
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Call the helpline and ask for a private conversation, with a woman doctor if you prefer, in Telugu or English. A CION surgical oncologist will tell you what is likely to be possible in your case. One helpline serves every centre.