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Palliative care alongside colon cancer treatment: what it is and when to ask | CION Cancer Clinics
Palliative care can start the day a colon cancer is found to have spread, and it runs alongside chemotherapy, targeted therapy, immunotherapy and surgery. It treats pain, bowel problems, poor appetite, tiredness and worry, for the patient and the family. It is not the same as end-of-life care, and it does not mean treatment has stopped. This page explains what it covers and how to ask for it. At CION Cancer Clinics, a multidisciplinary team plans colon cancer treatment for your stage, from surgery to chemotherapy and follow-up.
On this page
- Can you have palliative care while you are still on chemotherapy?
- What does palliative care actually help with in colon cancer?
- How do you ask for palliative care at CION?
- Four things families say about palliative care, and what is true
- What this page cannot tell you
- Common questions about palliative care in colon cancer
The short answer
Can you have palliative care while you are still on chemotherapy?
Yes, and for most people with advanced colon cancer it works best that way. Palliative care is specialist help with symptoms, stress and hard decisions. It sits beside your cancer treatment. It does not replace it.
Palliative care is not the same as hospice care
In many families the word palliative is heard as "nothing more can be done". That is not what it means. Care in the last weeks of life is one small part of palliative care. Palliative care itself can begin on the day spread is found and continue for years, while chemotherapy is still doing its job.
Why starting early helps
The National Cancer Institute reports that people who get palliative care early often have better quality of life and fewer distressing symptoms. A symptom treated early is easier to settle. A pain that has been ignored for a long time is harder to control than one reported at the first visit.
It still applies when surgery is the goal
Some people whose cancer has spread to the liver can have surgery that makes the disease potentially curable. You can read more on when liver metastases can be removed by surgery. Asking for palliative care does not close that door. It helps you get through intensive chemotherapy and a major operation in better shape.
Palliative care treats the person. Your oncologist keeps treating the cancer. Both happen at the same time.What it covers
What does palliative care actually help with in colon cancer?
Most of what it treats is ordinary, practical and very treatable. These are the four areas families ask about most.
Pain
Pain from the tumour, from spread to the liver or from an operation can almost always be eased. The team chooses the right medicine and the right dose, including morphine-type medicines when they are needed, and keeps adjusting until you can sleep and move.
Read more on pain control in advanced colon cancer.Bowel problems
Cramping, constipation, chemotherapy diarrhoea and a partly blocked bowel all have treatments. A blocked bowel may need a stent or a stoma. CION's surgical oncologists plan that procedure and it is carried out at an accredited partner hospital.
See managing a blocked bowel in advanced disease.Eating and weight
Poor appetite and weight loss frighten families more than almost anything. A nutrition plan built around foods the person actually wants helps more than forcing large meals.
Often easier to manage
- Small portions of rice with dal or curd
- Soft idli, upma or ragi porridge
- Buttermilk or tender coconut water for fluids
Tiredness, mood and sleep
Tiredness, low mood, worry and broken sleep are treated as symptoms, not as weakness. Counselling, medicines and small changes to the shape of the day can all help. The same support is offered to the family member doing most of the caring.
Not sure whether this applies to you?
Ask an oncologistGetting started
How do you ask for palliative care at CION?
Say it at your next visit
Tell your oncologist plainly: I would like help with symptoms alongside my treatment. You do not need to wait until a treatment stops working, and asking will not change your cancer plan.
Write down what is hardest
Before the first meeting, list the three things that make each day most difficult. Pain, sleep, not eating, worry about money. Put them in order. That list is where the plan starts.
The first conversation
The supportive care team asks about each symptom, checks every medicine you take and asks what matters most to you. Bring a family member, because they often notice what the patient does not mention.
A plan you can follow at home
You leave with written instructions: which medicine, when, and what to do if it is not enough. The plan is reviewed at every chemotherapy visit and changes as your treatment changes.
Go to the nearest emergency department the same day for severe tummy pain with vomiting and no wind or stool passing, a fever or shivering while on chemotherapy, vomiting that keeps all fluids from staying down, heavy or black bleeding, or sudden breathlessness. Say the person has colon cancer and is on treatment. For pain that the prescribed medicines no longer control, call the CION helpline the same day.
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Commonly believed
Four things families say about palliative care, and what is true
Asking for help with symptoms does not change the cancer plan. The two teams work together. Better symptom control often helps people stay on treatment and keep to the schedule.
Morphine-type medicines are used for cancer pain at every stage, including in people who are still working and travelling. The dose is set and reviewed by a doctor. Drowsiness in the first few days usually settles.
Pain is a symptom to be treated. Bearing it quietly, out of politeness or fear of seeming weak, wears down sleep, appetite and mood, and makes treatment harder to finish.
It can begin at diagnosis. The earlier it starts, the more it can do, because problems are caught while they are still small and the person still has energy to plan.
Being straight with you
What this page cannot tell you
It cannot tell you how well your treatment is working or what the future holds for one person. Those answers depend on scans, blood tests and the tumour board's review of your whole picture. They belong in a conversation with your oncologist, and our page on asking your doctor about prognosis can help you prepare for it.
It cannot set a dose for you
Every pain or sleep medicine needs a doctor who knows your kidneys, your liver and your other medicines. Do not raise, lower or stop a dose on your own, and do not borrow a relative's tablets, even when the pain looks the same.
Who this does not apply to
If you have finished treatment for an early colon cancer and are well, you usually do not need a specialist palliative team. Your follow-up clinic handles any after-effects. If the cancer started in the rectum, the rectal cancer section covers that disease, which is planned differently.
Not sure whether a symptom is worth raising? Call the helpline and describe it. Someone will tell you who should see it.Questions we are asked
Common questions about palliative care in colon cancer
Is palliative care the same as end-of-life care?
No. End-of-life care is the part of palliative care used in the last weeks of life. Palliative care itself can start at diagnosis and run for years alongside chemotherapy, targeted therapy or immunotherapy. Many people who receive it are still working, travelling and looking after their families.
Does being offered palliative care mean the cancer cannot be treated?
No. It means someone wants your symptoms looked after properly while the cancer is treated. Some people with spread to the liver are still potentially curable with surgery. Palliative care is offered to them too, because intensive treatment is easier to get through when pain and appetite are managed.
Is palliative chemotherapy the same as palliative care?
No. Palliative chemotherapy is chemotherapy given to control the cancer, slow it down and ease symptoms when removing it completely is not possible. Palliative care is the symptom, comfort and support side. Many people receive both at the same time, from teams that talk to each other.
Will pain medicines make me drowsy or confused?
Some people feel sleepy for the first few days after starting or increasing a morphine-type medicine. This usually settles. Constipation is common, so a laxative is normally prescribed at the same time. Tell the team about confusion or heavy sleepiness that does not pass, because the dose may need changing.
Can the plan be followed at home in a district town?
Usually, yes. The aim is a plan you can follow at home with tablets, syrups or patches. Ask for a written summary your local doctor can read, and ask whether symptom reviews can be timed with chemotherapy visits so the family does not travel twice.
Who in the family should come to the appointment?
Whoever does most of the daily caring, and whoever helps make decisions. In many homes these are different people, such as a daughter-in-law and a son. Hearing the plan together avoids confusion later about which medicine is given when.
My father will not admit he is in pain. What can I do?
Watch for signs instead of asking only in words: not sleeping, not eating, avoiding walking, holding his stomach, short temper. Write these down and share them with the team. Many older patients find it easier to talk about pain when a doctor asks than when family does.
How do I start if I am not sure what we need?
Call the CION helpline and describe what the hardest part of each day is. You do not need the right medical words. Someone will arrange a supportive care review alongside the existing treatment plan, at whichever CION centre is easiest to reach.
Meet CION's colon cancer specialists. Bring your colonoscopy, scan or biopsy report.
Our surgical and medical oncologists plan colon cancer care together: which operation, whether chemotherapy is needed, and the follow-up that comes after.
Dr. C. Raghavendra Reddy
MBBS(Gold Medal), DNB(General Medicine), DM(Medical Oncology)(Gold Medal)
Dr. Bharati Devi Gorantla
MBBS, MD(General Medicine), DM(Medical Oncology)(Adyar,Chennai), ECMO, MRCP SCE(UK)
Dr. Owais Mohammed
MBBS, MD (General Medicine), DrNB (Medical Oncology), ECMO, MRCP SCE (Medical Oncology) (UK)
Dr. Muralidhar Muddusetty
MBBS (AIIMS), MS (Surgery) (AIIMS), DNB (Surgical Oncology), MRCS (Edinburgh)
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Sources
- National Cancer Institute — Palliative Care in Cancer
- National Cancer Institute — Advanced Cancer
- ESMO — Colorectal Cancer: A Guide for Patients
- National Cancer Institute — Caregivers of Cancer Patients
This page is general information, not a prescription. Do not change or stop any treatment based on what you read here. If anything is worrying you, contact your own treating team — or call our helpline and we will help you reach the right specialist.
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