Limb-sparing surgery & prosthesis in children — keeping your child’s limb when bone cancer strikes
When a child is diagnosed with bone cancer — most often osteosarcoma or Ewing sarcoma — one of the first questions every parent asks is: “Will my child lose their arm or leg?” In most cases, the answer is no. Limb-sparing surgery (also called limb-salvage surgery) has become the standard of care at specialist centres, allowing surgeons to remove the tumour completely while preserving the child’s limb. This page explains what that surgery involves, what reconstruction options exist for growing children, when a prosthesis is used instead, and what the recovery journey looks like — step by step, in plain language for parents.
- Coordinated surgical & oncology team — medical, surgical, and rehabilitation specialists plan every case together at a tumor board before any decision is made
- 45-minute consultations — enough time to understand the tumour, the reconstruction options, and what each one means for your child’s future
- Free first consultation — bring your child’s MRI, biopsy report, or imaging and our team will review them with you at no charge
- Transparent costs & written plan — you receive a written treatment and cost plan before anything begins; decisions for healing, not billing
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How a child’s limb is rebuilt after the tumour is removed
Removing the tumour is only one part of limb-sparing surgery. The other — equally important — part is reconstruction: rebuilding the segment of bone that was removed so the child has a working limb. There are several ways this is done, and the right choice depends on your child’s age, which bone is affected, and how much bone must be removed. Your surgical team will explain all the options before any decision is made.
Metal Endoprosthesis (Internal Implant)
A metal endoprosthesis is a custom-fitted or modular implant made of titanium or cobalt-chrome alloy that replaces the removed segment of bone and the adjacent joint. It is placed inside the limb during surgery and is immediately load-bearing — meaning the child can begin to put weight through it relatively quickly under physiotherapy guidance. Endoprostheses are most commonly used around the knee (femur or tibia), the shoulder (humerus), and the pelvis. Modern implants are engineered to be durable and allow a wide range of movement. In older teenagers whose bones have stopped growing, a fixed-length implant is used. For younger children still growing, a different approach is needed — see the expandable prosthesis card below.
- Custom-fitted or modular to match the child’s anatomy
- Allows early return to weight-bearing and mobility
- Most commonly used for knee, shoulder, and upper femur locations
- May require revision surgery later in life as the child matures
Expandable (Growing) Prosthesis
For children who are still growing, a standard fixed-length implant would quickly become too short as the other limb grows, leading to a limb-length difference. An expandable prosthesis solves this problem: it contains a mechanism that allows the implant to be lengthened over time, keeping pace with the child’s natural growth. Traditional expandable prostheses required a minor surgical procedure every few months to lengthen them. Newer non-invasive expandable systems use an external magnetic device placed over the skin to activate an internal motor inside the implant and lengthen it gradually — no surgery needed for each lengthening session. This is an important advance for families, as it significantly reduces the number of operations a child needs during their growing years. Not every implant site is suitable for a non-invasive system; your surgeon will advise based on your child’s case.
- Keeps limb lengths equal as the child grows
- Non-invasive lengthening available at selected specialist centres
- Particularly important for children under 12 at the time of surgery
- Requires regular follow-up to monitor growth and plan lenthenings
Bone Graft Reconstruction
In some situations, the gap left by removing the tumour is filled with a bone graft rather than — or in addition to — a metal implant. An autograft uses bone taken from another site in the child’s own body — most often the fibula (the slender bone in the lower leg). The fibula can be transplanted along with its blood supply (a vascularised fibula graft), which encourages the graft to incorporate into the surrounding bone over time, becoming a living part of the skeleton. A cadaveric allograft uses donor bone from a bone bank; this is sterilised and shaped to fill the defect. Bone grafts take longer to incorporate than metal implants and are generally not weight-bearing as quickly, but when successful they offer the advantage of using biological material that can remodel over time. A combined approach — part metal implant, part bone graft — is also used in some cases.
- Autograft (own bone) is the biological gold standard when feasible
- Vascularised fibula graft becomes a living part of the skeleton over time
- Cadaveric allograft avoids a second surgical site
- Takes longer to become fully weight-bearing than a metal implant
When Amputation Becomes Necessary — and What It Means
Limb-sparing surgery is not always the right option for every child. Amputation may be recommended if the tumour has grown to directly involve the major blood vessels or nerves of the limb, making it unsafe to preserve function; if the biopsy was not correctly planned and has contaminated tissue planes; or if the tumour does not respond sufficiently to pre-operative chemotherapy, meaning a complete removal with a safe margin is not achievable while keeping the limb. When amputation is necessary, it is important for parents to understand that modern external prosthetic limbs are remarkable. Children and teenagers adapt with great resilience. Today’s prosthetic technology — microprocessor knee joints, carbon-fibre running blades, sport-specific limbs — allows children who have undergone amputation to run, swim, cycle, and participate fully in school life and sports. The outcome in terms of overall cancer treatment is the same as limb-sparing surgery when either is done well at a specialist centre.
- Modern external prostheses allow full participation in sports and daily life
- Children adapt remarkably well with specialist rehabilitation support
- Cancer treatment outcome is not worse with amputation when it is the right choice
- Psycho-oncology and peer support are essential parts of the recovery process
Limb-sparing surgery is one part of a coordinated treatment approach. For the full picture of childhood bone cancer, visit the bone cancer in children page, or see the Pediatric Cancer hub for all childhood cancer information.
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MBBS, MS(General Surgery), M.Ch(Surgical Oncology), FMAS, FARIS(Ongoing)
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Your child deserves a plan, not just an opinion
Every limb-sparing case at CION is reviewed by a tumor board — surgical oncologists, medical oncologists, and rehabilitation specialists together — before any decision is made. Bring your child’s scans and we will give you a clear, honest picture of what is possible.
Limb-sparing surgery from diagnosis to walking again — step by step
Limb salvage in a child is not a single operation — it is a carefully sequenced process involving chemotherapy before surgery, the operation itself, and months of rehabilitation afterwards. Understanding the full journey helps parents prepare practically and emotionally. Each step below reflects the coordinated care approach at CION.
Biopsy — planned by the treating surgeon
The diagnostic journey usually begins with imaging — a plain X-ray that raises concern, followed by an MRI scan of the affected bone. If the MRI findings are suspicious for a bone sarcoma, the next step is a biopsy to confirm the diagnosis. It is critical that the biopsy is planned in close collaboration with the surgeon who will perform the definitive surgery. The entry point and the route of the biopsy needle must be placed in a position that can be completely excised during the later reconstruction, so that no cancer cells are left behind and the biopsy tract does not compromise the reconstruction. A staging CT scan of the chest and a whole-body bone scan or PET scan are also done at this point to check whether the cancer has spread to the lungs or other bones.
Tumor board review — before treatment begins
Once the biopsy result and staging scans are available, the case is presented at a multidisciplinary tumor board where the paediatric medical oncologist, surgical oncologist, radiation oncologist, radiologist, and pathologist review all the findings together. This is where the initial treatment plan is agreed: which chemotherapy protocol will be used before surgery; the surgical approach and reconstruction plan; and whether radiation therapy will have a role (most relevant for Ewing sarcoma). Parents are encouraged to bring all their questions to this stage of the process. At CION, every paediatric bone tumour case goes through a tumor board before treatment begins.
Pre-operative chemotherapy — shrinking the tumour before surgery
For both osteosarcoma and Ewing sarcoma, chemotherapy is given before the surgery (called neoadjuvant or pre-operative chemotherapy). This serves several important purposes: it shrinks the tumour, which can make the surgical margins safer and the reconstruction more predictable; it treats any microscopic cancer cells that may have spread elsewhere in the body but are not yet visible on scans; and it gives the surgical team time to prepare the custom implant or plan the graft. The chemotherapy phase typically lasts two to four months, and the child is assessed with a repeat MRI scan during this period to see how well the tumour is responding. The quality of the tumour’s response to pre-operative chemotherapy is one of the most important indicators of how the treatment is going.
The surgery — removing the tumour and rebuilding the limb
Limb-sparing surgery removes the tumour-containing segment of bone along with a margin of surrounding healthy tissue, and then reconstructs the limb using the approach that was planned before treatment began — a metal endoprosthesis, an expandable growing implant, a bone graft, or a combination. The surgery is performed under general anaesthesia and typically takes several hours. The removed tumour specimen is sent to the pathologist immediately after surgery for a detailed assessment — in particular, to measure the histological response: the percentage of cancer cells killed by the pre-operative chemotherapy. A good histological response (more than 90% tumour necrosis) is a positive indicator. This result guides the post-operative chemotherapy plan.
Post-operative rehabilitation — learning to use the reconstructed limb
Physiotherapy begins within the first few days after surgery, initially focused on gentle movement, preventing muscle wasting, and managing swelling. Weight-bearing is gradually introduced based on which bone was reconstructed and how stable the implant is. Over the following weeks and months, the physiotherapy programme builds strength, range of movement, and confidence. Children are remarkably resilient — many younger children regain movement and confidence faster than adults. However, recovery is not linear, and parents should expect both good days and harder days. Emotional support — for both the child and the family — is as important as physical rehabilitation during this period.
Post-operative chemotherapy — completing the systemic treatment
After the surgical wound has healed sufficiently (usually within three to four weeks of surgery), post-operative chemotherapy resumes and continues for several more months. The chemotherapy protocol after surgery may be adjusted based on the histological response seen in the tumour specimen. The child continues to have regular scans during this phase to monitor for any signs of recurrence. For Ewing sarcoma, radiation therapy to the tumour bed may also be added at this stage if the surgical margins were not as wide as desired. Throughout this phase, CION’s team maintains the coordinated approach — medical, surgical, and supportive care working together.
Long-term follow-up — monitoring for growth, implant, and recurrence
After treatment ends, children with limb-sparing surgery enter a long-term follow-up programme. This has two parallel goals: monitoring for any cancer recurrence (most common in the lungs, so CT scans of the chest are done regularly); and monitoring the reconstructed limb itself. For children who received an expandable prosthesis, the follow-up team monitors limb-length equality and schedules lengthening sessions as needed. Over many years, metal implants may require revision surgery as they wear or as the child grows. Children are also followed by a physiotherapist and occupational therapist to optimise long-term function and return to sports and activities. The good news is that many children treated for bone sarcoma lead full, active lives after limb-salvage surgery — including sport, higher education, and independent adulthood.
For a full overview of how bone sarcoma is diagnosed and staged, visit our bone cancer in children page. To understand imaging used during diagnosis, see childhood cancer scans & imaging.
Talk to a Specialist About Your Child’s Surgery Options
Our paediatric surgical oncology team reviews every bone tumour case at a multidisciplinary board. Bring your child’s scans and we will give you a clear, honest plan — at no cost for the first consultation.
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At CION, we walk this journey with you. Every paediatric bone tumour case is reviewed by a full team — medical, surgical, radiation, and rehabilitation — before any recommendation is made. Bring your child’s reports. Ask every question. No commitment to start treatment required.
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