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PAEDIATRIC CANCER SURVIVORSHIP
Survivorship care plan — what it is & why it matters
Medically reviewed by the CION Paediatric Oncology Team · Last reviewed June 2026
When your child finishes cancer treatment, the oncology team's work is not over — and neither is yours. A survivorship care plan is a written record that travels with your child through every stage of life, making sure late effects are caught early and nothing falls through the cracks. This page explains what goes into a survivorship care plan for a child, why the plan matters decades after treatment ends, and how to get one if you do not already have it.
- What a survivorship care plan contains — diagnosis, treatment history, and follow-up schedule explained
- Cancer survivor care plan for life — why the plan matters at 10, 20, and 40 years of age
- After treatment plan for your child — who prepares it, when, and what happens next
- Free specialist consultation — CION's paediatric oncology team walks this journey with you
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UNDERSTANDING THE PLAN
What is a survivorship care plan for a child?
A survivorship care plan is a written document created by your child's oncology team when active treatment comes to an end. It is sometimes called an end-of-treatment summary or a discharge care plan. The document records exactly what happened during treatment — every diagnosis, every procedure, every medicine — so that any doctor who sees your child in the future has the full picture, even if they were not involved in the original care.
Survivorship plans matter because childhood cancer treatment does not leave the body unchanged. Certain agents used in chemotherapy, areas treated with radiation, and surgeries can affect how organs, hormones, bones, and the brain develop over time. These effects can appear months or decades after treatment ends. Without a written record, families and doctors may not know which checks to run or when.
A good cancer survivor care plan does not replace ongoing medical care. It works alongside your child's paediatrician and specialists — giving every clinician the same starting point and making sure follow-up is structured and timely rather than reactive.
If your child has already finished treatment and you have never received a formal written plan, you are not alone. Many families complete treatment without one. The important thing is that it is never too late to request one or to have a comprehensive survivorship review done now.
Did you know?
Children who complete cancer treatment today face a meaningful risk of late health effects that may not appear until adulthood. Evidence-based guidelines from organisations such as the Children's Oncology Group (COG) recommend structured, risk-based follow-up throughout life — because many effects become detectable only years after the last dose of treatment. A written survivorship care plan is the foundation of this follow-up. Without it, late effects screening cannot be personalised to your child's specific treatment history.
INSIDE THE DOCUMENT
What does a childhood cancer survivorship care plan include?
A complete after treatment plan for your child covers six key areas. Together they give any future doctor everything needed to care for your child appropriately — from the next check-up to a medical appointment twenty years from now.
01
Diagnosis summary
The cancer type, subtype, stage at diagnosis, and the date of diagnosis. This section also records any genetic or molecular findings that may be relevant to your child's risk for future cancers or inherited conditions in the wider family.
02
Treatment received
A full record of every treatment your child received — surgical procedures with details of what was removed or altered; chemotherapy agents with cumulative doses; radiation therapy with the area treated, the technique used, and total dose in Grey; and any other procedures such as stem-cell transplant or intrathecal therapies. Cumulative doses of specific agents are critical because late effect risk is often dose-dependent.
03
Late effects at risk
A personalised list of the health effects your child may develop based on the specific treatments they received. This is not a prediction — it is a risk-awareness list. It tells future doctors and your child (as they grow up) which body systems deserve extra attention. Common areas include the heart and circulation, hormone-producing glands, hearing, kidneys, bone density, fertility, and cognitive function.
04
Recommended follow-up schedule
A clear timetable of which check-ups, blood tests, scans, and specialist referrals are recommended and at what intervals. Early on, reviews may be every few months. As years pass and the situation remains stable, annual or less frequent checks may be appropriate. The schedule is built around your child's specific risk — not a one-size-fits-all timetable.
05
Healthy living and wellbeing guidance
Guidance on vaccinations (some children need to be re-vaccinated after certain treatments), physical activity, nutrition, sun protection, and avoidance of smoking or alcohol — all of which matter more for childhood cancer survivors than for the general population. The plan may also include referrals to psychosocial support, educational assistance, or fertility preservation counselling as appropriate.
06
Emergency and contact information
Contact details for the paediatric oncology team, relevant specialists, and the hospital where treatment took place. The plan should also note any signs or symptoms that should prompt an urgent review — for example, unexplained bruising, new lumps, persistent fever, or a rapid change in energy levels — so that you and your child know when not to wait for the next scheduled appointment.
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Your child deserves a clear plan for life after cancer
A survivorship care plan is not a formality — it is the foundation of your child's long-term health. Our paediatric oncology team is here to help you build it.
WHY IT MATTERS LONG-TERM
A survivorship care plan stays relevant for life — not just the first few years
Many families assume that once the five-year mark passes without recurrence, the risk is behind them. For most children this is true for cancer returning — but a survivorship care plan is not just about watching for relapse. It is about protecting your child's health across an entire lifetime.
Some late effects of childhood cancer treatment appear within the first year after finishing. Others do not emerge until five, ten, or twenty years later. For example, certain effects on the heart may not become clinically apparent until a survivor is in their thirties or forties. Bone density changes can accelerate in early adulthood. Hormone-related effects may only become visible when a survivor reaches reproductive age. This is why international paediatric oncology guidelines recommend ongoing, structured follow-up that continues into adulthood — not a programme that stops when a child turns 18.
The transition from paediatric to adult care is one of the riskiest moments for a childhood cancer survivor. Young adults often have a gap in care as they move away from home, change doctors, or simply feel well and stop attending reviews. A written survivorship care plan bridges that gap. It allows a new GP or adult specialist to pick up exactly where the paediatric team left off, with the full treatment summary in hand.
As your child grows up, the plan itself should be updated to reflect new findings, completed screening cycles, or changes in risk — and a copy should always travel with your child. Some families keep a digital copy alongside important documents; others carry a printed summary to every medical appointment. Either approach works — what matters is that the information is accessible.
SURVIVORSHIP AT CION
How we support your child's life after treatment
Our paediatric oncology team does not consider the job done when active treatment ends. We walk this journey with you — from end-of-treatment planning through every stage of your child's recovery and growth.
Written plan
Personalised survivorship care plan
We prepare a thorough written survivorship care plan at the end of active treatment — or retrospectively for children who completed treatment elsewhere. Every plan is built from your child's actual treatment record, not a generic template.
Structured follow-up
Risk-based screening schedule
Follow-up appointments and tests are scheduled according to each child's individual risk profile. We do not recommend unnecessary tests — and we do not skip the ones that matter. Decisions for healing, not billing.
Multi-disciplinary
Tumour board for every patient
Your child's case is not managed by one doctor's opinion alone. Our tumour board brings together medical, surgical, and radiation oncologists — and calls in cardiologists, endocrinologists, or other specialists when late effects warrant it.
Beyond medicine
Allied care and emotional support
Survivorship is not only physical. We connect families with nutritional guidance, psycho-oncology support, and educational liaison where needed — because healing continues long after the last treatment session ends.
Transition support
Supporting the move to adult care
As your child reaches adulthood, we help ensure a smooth handover to adult oncology or general physicians. The written survivorship plan is the bridge that makes that transition safe — so no information is lost and no checks are skipped.
Second opinion
Free written second opinion
If you are uncertain about your child's current follow-up plan, or if you received a survivorship summary elsewhere and want it reviewed, our specialists are available for a free written second opinion. You deserve confidence in the plan — not just a piece of paper.
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