Blood counts
Managing daily life with a low haemoglobin
By spending your energy deliberately rather than running out by eleven in the morning. Decide what actually matters that day, do it when you have most in reserve, and let the rest go. The instinct is to push through and prove you are still capable, and with a low haemoglobin that reliably produces a crash and a day lost recovering.
The short answer
How do you get through a day on very little energy?
By spending it deliberately rather than running out of it by eleven in the morning. Decide what actually matters that day, do it when you have most in reserve, and let the rest go. That sounds obvious and almost nobody does it.
The instinct is to push through and prove you are still capable. With a low haemoglobin that reliably produces a crash, followed by a day lost recovering, and the total achieved is less than if you had paced.
This is not the same as giving up
Pacing is a technique, not a surrender. People who pace well get more done across a week than people who alternate between pushing and collapsing. It is also considerably easier on the household.
Keep reporting the tiredness while you manage it. Coping well is not a reason for it to go untreated.The method
Pacing, in practice
Find your best hours
Most people have a window when they function better, often earlier in the day and further from the last cycle. Notice yours over a week, and stop scheduling important things outside it.
Choose three things, not ten
Decide in the morning what actually matters today. Three is usually realistic. A long list guarantees failure and the sense of failure costs energy of its own.
Rest before you are exhausted
Short rests taken deliberately, before you hit the wall, work far better than long collapses afterwards. Sit down partway through a task rather than at the end of it.
Break tasks into pieces
Cooking a meal becomes chopping now, cooking later. A bath becomes sitting on a stool with everything within reach. Nothing has to be done in one continuous effort.
Sit for anything you can
Chopping, ironing, washing dishes, brushing teeth, getting dressed. Standing costs far more than people realise, and a stool in the kitchen and the bathroom changes the day.
Let other people do things
Accepting help is the hardest step and the one that returns most. Give people specific jobs rather than waiting for offers — most relatives want to help and do not know what to do.
Not sure whether this applies to you?
Ask an oncologistBreathlessness at rest or on very little effort · chest pain · a racing heart that will not settle · fainting, or nearly fainting · confusion or unusual drowsiness · a fall, especially with a head injury · black tarry motions, blood in the motions or vomit, or any heavy bleeding · a fever alongside any of these. Go to the nearest emergency department and say clearly that the person is on chemotherapy. Pacing is for managing tiredness, not for managing any of these.
Around the house
Practical changes that save real energy
Small adjustments, mostly free, that add up to a noticeably easier day.
Prevent falls
Dizziness on standing is the real danger here. Sit up first, then stand, then pause before walking. Keep the route to the bathroom clear and lit, and remove loose mats.
Especially at night
- A night light on the route
- Water and phone within reach of the bed
Bring things down a level
Move what you use daily to waist height, and keep a set of essentials downstairs if you live on two floors. Every trip up the stairs you do not have to make is energy kept.
Cook once, eat twice
Make larger amounts on a good day and refrigerate portions. Keep curd, bananas, cooked rice and something to drink ready so a meal never depends on having energy at that moment.
Eating well is part of managing this, not separate from it.Shower sitting down
A plastic stool in the bathroom, everything within arm's reach, and warm rather than hot water — heat increases dizziness. Do not lock the door if you are prone to feeling faint.
Keep moving a little
Short gentle walks, within what you can manage, prevent the muscle loss that makes everything harder. Complete rest for weeks makes the tiredness worse rather than better.
Sleep properly at night
Long afternoon sleeps wreck the night and leave you more tired. Short rests rather than hours, and if steroids are keeping you awake, ask about taking them earlier in the day.
Other people
Explaining it to family and to work
The commonest misunderstanding is that this tiredness is low mood, or lack of effort, or giving in. Saying plainly that it is a measurable blood problem — fewer red cells, less oxygen carried — usually changes how a household behaves, because it gives people something concrete rather than something to argue with.
Give relatives specific jobs
"Could you do the shopping on Tuesdays" works. "Let me know if you need anything" does not, because asking each time costs energy and pride. People generally want to help and are waiting to be told how.
At work, ask for the specific adjustment
Working from home on your worst days, later start times, a chair instead of standing, or fewer stairs. You do not have to discuss the diagnosis broadly — one manager knowing you have a condition requiring treatment is usually enough.
Say what you can do, not what you cannot
"I can manage the morning" lands better than "I cannot do anything", both at home and at work, and it is usually more accurate. It also stops people either overestimating or writing you off entirely.
If the tiredness is bad enough to stop you working, tell your oncology team. That is a reportable symptom, not just a life problem.Leave a number, we will call you
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Being straight with you
What this page cannot tell you
It cannot tell you how much activity is safe for you. That depends on your blood counts, your heart and lungs and where you are in the cycle, and during the low-count days your team may want you avoiding crowds and strenuous effort for reasons unrelated to tiredness.
It also cannot tell you whether a low haemoglobin is what is making you tired. Thyroid problems, low mood, infection, poor sleep, the cancer itself and the treatment all cause it, and several are treatable. Coping well with tiredness is not a reason to stop looking for the cause.
What to do next
Pick your three things for tomorrow and decide when you will do them. Put a stool in the kitchen and the bathroom. Clear and light the route to the toilet. Give one relative a specific job. And keep reporting the tiredness at every review rather than managing around it silently.
Questions we are asked
Common questions about managing day to day
Should I rest completely?
No. Complete rest for weeks weakens muscle and makes the tiredness worse over time. Short gentle activity within your limits, with deliberate rests, works better than either pushing hard or stopping entirely. Ask your team what is reasonable during your low-count days.
Why does sleeping not help?
Because this is not sleep debt. Fewer red cells means less oxygen reaching the muscles and brain, and no amount of sleep corrects that. Rest helps you function within your limits; it does not fix the underlying problem, which is why it should still be reported.
Can I still work?
Many people do, with adjustments — working from home on the worst days, later starts, sitting rather than standing. Ask for the specific adjustment rather than a general allowance. If tiredness is stopping you working, tell your oncology team, because that is a reportable symptom.
Is it safe to drive?
Ask your team. Tiredness, dizziness and poor concentration all affect driving, and several medicines add to it. If you feel faint on standing, are drowsy, or cannot concentrate, do not drive. Many people stop during the difficult days of each cycle and resume in the good week.
My family think I am being lazy. How do I explain?
Say it is a measurable blood problem — fewer red cells carrying oxygen — rather than a state of mind. Concrete explanations work where general ones do not. If it persists, ask the team to explain it at an appointment with the family present.
How do I avoid falling?
Move between positions slowly — sit up, then stand, then pause before walking. Keep the route to the bathroom clear and lit at night, remove loose mats, and sit down to shower. Falls are the commonest real harm from dizziness, particularly in older people.
Will this last after treatment ends?
Usually it improves over weeks to months as the marrow recovers, though tiredness is often among the last things to settle. If it has not improved at all several months after finishing, that should be looked into rather than accepted as permanent.
Would exercise make it better or worse?
Gentle regular activity generally helps tiredness, mood and muscle, and is usually encouraged. Intensity and timing matter, particularly during low-count days and if platelets are low. Walking is the safest starting point — ask your team before anything more.
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Sources
- Macmillan Cancer Support — Cancer-related fatigue
- Cancer Research UK — Tiredness and cancer
- National Cancer Institute — Fatigue (PDQ)
This page is general information, not a prescription. Do not change or stop any treatment based on what you read here. If anything is worrying you, contact your own treating team — or call our helpline and we will help you reach the right specialist.
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