The infusion day
Medicines to take home after each cycle
Usually anti-sickness medicines, sometimes steroids, sometimes something for the bowels. Most of it starts that same evening — not when you begin to feel unwell, and not the next morning. That timing is the whole point: anti-sickness medicine works far better taken before sickness arrives than after, and treating it as something to take when needed is why plans appear to fail.
The short answer
What are you sent home with, and when do you start?
Usually anti-sickness medicines, sometimes steroids, sometimes something for the bowels, and occasionally an antibiotic or an injection. Most of it starts that same evening — not when you begin to feel unwell, and not the next morning.
That timing is the whole point. Anti-sickness medicine works far better taken before sickness arrives than after, and the commonest reason a plan appears to fail is that it was treated as something to take when needed rather than on a schedule.
Take them on the days you feel well too
People stop on day two because nothing has happened. What has happened is that the medicine is working. If you are given a set number of days, that count is the instruction, not a maximum.
Set phone alarms for every dose before you leave the hospital. It is the single most effective thing you can do with this page.What you may be given
The categories, and what each is for
Described as categories rather than as instructions. What you get depends on your treatment.
Anti-sickness medicines
Almost always, often more than one working in different ways, taken on a schedule for a set number of days. These are the ones that must not be skipped and must not be stopped early.
Ask
- Which times, and for how many days?
- What do I take if it breaks through?
Steroids
Often for a few days after each cycle. They help with sickness and reactions, and they cause sleeplessness, appetite and sometimes raised blood sugar. Never stop or reduce them on your own.
Ask about taking them earlier in the day if they keep you awake.Something for the bowels
Many teams give a laxative routinely alongside anti-sickness medicines, because those slow the bowel so reliably. Ask whether you should be taking one from day one rather than waiting.
Mouth care preparations
A rinse, something to numb before meals, or an antifungal if there has been a problem. Ask exactly when to use a numbing preparation, as the timing before eating is the point of it.
Antibiotics or antivirals
Sometimes given preventively, sometimes to keep at home with instructions. If you are given either, ask precisely when to start it and when not to — that condition matters.
An injection
Some people are given an injection after each cycle to help white cells recover. Ask what it is for, who gives it, when, and what to expect — bone and muscle aching is common with these.
Not sure whether this applies to you?
Ask an oncologistA fever, or shivering uncontrollably · nothing staying down · no urine since the morning · breathlessness or chest pain · bleeding that will not stop · severe stomach pain · confusion. Go to the nearest emergency department the same day and say clearly that the person is on chemotherapy. Do not take paracetamol to bring a temperature down before being seen, and never start a leftover antibiotic from a previous illness.
Where it goes wrong
The four mistakes that cause most trouble
Almost every difficult first week traces back to one of these, and all four are avoidable in the two minutes before you leave the unit.
Not collecting them
A prescription still at the pharmacy counter at eight in the evening means the anti-sickness cover never starts. Have the medicines physically in the bag before you leave the building.
Taking them only when unwell
The commonest error by far. Most of these work preventively and are prescribed on a schedule. Waiting for symptoms means the medicine is always behind the sickness rather than ahead of it.
Stopping early because you feel fine
Feeling fine on day two is usually evidence the medicine is working. Complete the number of days you were given, every cycle, even when it seems unnecessary.
Following last cycle's instructions
Plans get adjusted at reviews, and the change is easy to miss at a busy desk. Compare the new boxes against the old ones, and ask what is different and why before you leave.
If you stopped something because of cost or a side effect, say so at the next review. Teams cannot fix a plan they believe you are following.Leave a number, we will call you
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At home
Storing, tracking and questions that come up
Keep everything for this cycle in one box or bag, separate from the household's other medicines, with the written schedule taped to it. Mixed into a general medicine drawer is how doses get missed and how the wrong tablet gets taken.
Write the schedule where the family can see it
Which tablet, what time, how many days. On the fridge alongside the emergency list. Whoever is at home at the relevant hour needs to be able to read it, not ask the person who is unwell.
If a dose comes back up
Ask your team in advance what they want you to do, because the answer differs between medicines and there is no safe general rule. Write it down. If nothing is staying down at all, that is a reason to contact them rather than to keep trying.
If you miss a dose
Again, ask in advance rather than deciding at the time. Never double up to catch up without being told to. Note the miss so you can mention it at the review if the cycle went badly.
Storage and children
Out of reach of children, away from heat and damp, in the original boxes so the names and dates stay readable. Check expiry dates if you are given several cycles' worth at once.
Take every box to each review, including anything bought over the counter. It is the only reliable medicine list.Being straight with you
What this page cannot tell you
It cannot tell you which medicines you should be on, how much, or for how many days. Those depend entirely on your treatment and your own situation, and nothing here should be used to start, stop or change anything you have been prescribed.
It also cannot tell you what to do if a dose is missed or vomited back. That genuinely differs between medicines, which is why it belongs on your written sheet rather than in a general answer. Ask before you need it.
What to do next
Before leaving the unit, check the medicines are in your hand and the schedule is in writing. Set the alarms before you leave the building. Put the schedule on the fridge. Ask what to do about a missed or vomited dose. And take the first one that evening, whether or not you feel unwell.
Questions we are asked
Common questions about take-home medicines
When do I start them?
Usually that same evening, unless told otherwise. Not when you begin to feel unwell and not the next morning. Anti-sickness medicine works far better ahead of sickness than behind it, which is why the schedule matters more than how you feel.
Do I take them if I feel completely fine?
Yes, for the full number of days you were given. Feeling fine is usually evidence the medicine is working. Stopping early because nothing has happened is the commonest reason people conclude their anti-sickness plan does not help.
What if I am sick straight after taking one?
Ask your team in advance and write the answer down, because it differs between medicines and there is no safe general rule. If nothing is staying down at all, contact them rather than repeatedly swallowing tablets that come back up.
Can I take my usual medicines alongside these?
Usually yes, but check rather than assume, particularly for blood pressure, diabetes, thyroid and heart tablets, and anything bought over the counter. Take every box to each review so the whole list can be seen together.
I cannot afford all of them. What should I do?
Say so rather than quietly buying fewer. Ask for generic names, ask which are essential and which are optional, and ask for the medical social worker. Skipping anti-sickness medicine reliably costs more through hospital visits and delayed cycles.
The boxes look different from last cycle. Is that a mistake?
It may be a deliberate change from the review, or a different brand of the same generic. Ask before you leave rather than guessing at home. Changes get missed constantly and then taken on the previous schedule.
What if I forget a dose?
Ask your team in advance what they want you to do and write it on the sheet. Never double up to catch up unless told to. Note the miss, because if the cycle goes badly that is relevant information at the next review.
Should I keep leftover medicines for next time?
Only if your team tells you to, and never take them on your own judgement. Keep them in original boxes, check expiry dates, and show everything at the next review so the team knows what you actually have at home.
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Sources
- Cancer Research UK — Having chemotherapy
- National Cancer Institute — Nausea and Vomiting Related to Cancer Treatment (PDQ)
- Macmillan Cancer Support — Having chemotherapy
This page is general information, not a prescription. Do not change or stop any treatment based on what you read here. If anything is worrying you, contact your own treating team — or call our helpline and we will help you reach the right specialist.
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