Caretaker guide
Managing medicines at home
With one written chart, one box, one tick sheet and one person responsible. A patient on chemotherapy often has six or eight medicines on different schedules, and the mistakes families make are almost always organisational rather than medical. Every dose and timing still comes from your own team.
The short answer
How do you manage several medicines at home during chemotherapy?
With one written chart, one box, one tick sheet and one person responsible. A patient on chemotherapy commonly has six or eight medicines at once, on different schedules, some only for a few days of each cycle, some before food and some after. Memory is not a system, and the mistakes families make are almost always organisational rather than medical.
This page does not give doses and never will. Every dose and timing comes from your own team and your own prescription. What it gives you is a way of organising those instructions so the right tablet is taken at the right time, every time, by whoever is on duty.
Ask for the schedule in writing before you leave
Each medicine, what it is for, when to take it, with or without food, and for how many days. Written by the team or checked by them, not remembered from a rushed conversation.
Tick every dose as it is given
A sheet on the wall with a box for each dose. It is the only reliable way to know whether a tablet has been taken when two relatives are sharing the job.
Never change, stop or double a dose yourself
If a dose is missed, vomited or doubtful, ring the team for advice rather than guessing. This matters especially for oral chemotherapy.
Bring all the medicines, including tonics and herbal products, to every appointment.For each medicine
The six things to have written down
- What it is for
- In plain words: sickness, constipation, stomach protection, counts, infection prevention, the chemotherapy itself. Knowing the purpose makes it much harder to confuse two white tablets.
- When it is taken
- The actual times, and whether it is on a schedule or only when needed. Anti-sickness tablets are frequently taken on a schedule rather than waiting until sickness starts.
- With or without food
- Some must be taken on an empty stomach, some with a meal, some with a full glass of water. Write it beside each medicine on the chart.
- For how many days
- Many supportive medicines are only for the first few days of each cycle. Families keep giving them for a fortnight, or stop the ones that should continue.
- What to do if a dose is missed or vomited
- Ask this for every medicine, and write the answer down. For oral chemotherapy in particular, never double up without advice.
- What side effects to report
- Which effects are expected and which need a call. Having this written prevents both unnecessary panic and unreported problems.
Not sure whether this applies to you?
Ask an oncologistPractical
A system that works when everybody is tired
Simple enough to follow at three in the morning.
One chart on the wall
Every medicine in a row, the times across the top, and what each is for. Rewritten whenever the prescription changes, with the date, and the old one thrown away.
Include
- Before or after food
- Which days of the cycle
One box, out of reach
All the patient's medicines in one place, away from heat, damp and children. The family's own medicines kept somewhere else entirely, so nothing gets mixed.
A tick sheet for every dose
A box for each dose, ticked as it is given, with the initials of the person giving it. Two relatives sharing the job without a tick sheet is how doses get doubled or missed.
Note beside the tick
- If a dose was vomited
- If it was late, and why
A weekly pill organiser for regular medicines
Filled once a week by the responsible person for the regular medicines. Ask your pharmacist or team whether oral chemotherapy should stay in its original packaging instead.
Phone alarms for the difficult times
Especially for medicines that must be taken on an empty stomach or at night. An alarm on two phones means the dose does not depend on one person waking.
A dose of oral chemotherapy was doubled or taken by the wrong person · a child has swallowed any of the patient's medicines · the patient cannot keep medicines down · a new rash, swelling of the face or lips, or difficulty breathing after a medicine · severe diarrhoea while taking oral chemotherapy · confusion or unusual drowsiness · a fever at or above your team's threshold. Breathing difficulty, face swelling, a child swallowing medicines, or a fever means the nearest emergency department immediately. Take the medicine packets with you.
Being straight with you
What this page cannot tell you
It cannot tell you any dose, timing or duration, and deliberately does not. Those come from your prescription and your team, and they differ between patients and between cycles. Where anything here seems to conflict with what you were told, follow your team.
It also cannot tell you whether a particular over-the-counter, herbal or ayurvedic product is safe alongside your treatment. Several are not. Show every one to your oncologist before giving it.
Oral chemotherapy needs extra care
Ask how it should be handled, whether carers should wear gloves, whether it can be crushed or split, and how to dispose of unused tablets. Never give it to anybody else, and never keep it in a shared pill box.
Old medicines should go
Previous prescriptions, expired tablets and leftovers from earlier cycles cause confusion. Ask the pharmacy how to dispose of them safely, especially any chemotherapy.
One person owns the system
Others can give doses, but one person fills the organiser, updates the chart and collects the prescriptions. Shared responsibility for medicines tends to mean nobody's responsibility.
What to do next
Ask for the full schedule in writing before leaving the next appointment. Put every medicine in one box. Write the chart and put it on the wall with a tick sheet. Set phone alarms. Name one person responsible, and bring all the packets to every visit.
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Commonly believed
Four medicine mistakes families make
Many are prescribed on a schedule precisely so the sickness never starts. Waiting until it does often means the tablet is vomited before it works. Follow the written timing.
Never double a dose without advice, and especially not oral chemotherapy. Ring the team, say what was missed and when, and do what they advise.
Several herbal and ayurvedic products interact with chemotherapy or affect the liver and kidneys. Show it to the oncologist before giving it, whatever the family thinks of it.
Many supportive medicines are only for a few days of each cycle. Check the written duration for each one, and ask before continuing anything beyond it.
Questions we are asked
Common questions about medicines at home
How do we keep track of so many medicines?
One written chart on the wall, one box, a tick sheet for every dose, phone alarms, and one person responsible for the system. Memory does not work with six or eight medicines on different schedules.
What if a dose is missed?
Ring your team for advice, especially for oral chemotherapy. Never double the next dose on your own. Ask this question for each medicine at the start, and write the answer down.
What if the tablet is vomited?
Note the time and ring the team rather than repeating the dose. If the patient cannot keep any medicines down, that needs the team the same day.
Can we crush or split tablets?
Only if your team or pharmacist says so. Several medicines, including many oral chemotherapy tablets, must not be crushed or split. Ask before doing it.
Should carers wear gloves?
For oral chemotherapy, ask your team, because handling advice differs between drugs. Wash hands after giving any medicine regardless.
Can we give paracetamol for pain?
Ask your team what is safe for pain. Never give it to bring a fever down before the patient has been seen, because it hides the sign the hospital needs.
What about herbal and ayurvedic medicines?
Show every one to your oncologist before giving it. Several interact with chemotherapy or affect the liver and kidneys. Bring the actual packets rather than describing them.
How should we dispose of unused chemotherapy tablets?
Return them to the hospital pharmacy or ask how to dispose of them safely. Never throw them in household rubbish or flush them away, and never give them to anybody else.
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Sources
- National Cancer Institute — Chemotherapy and You: Support for People With Cancer
- Macmillan Cancer Support — Looking after someone with cancer
- American Cancer Society — Caregiver Resource Guide
This page is general information, not a prescription. Do not change or stop any treatment based on what you read here. If anything is worrying you, contact your own treating team — or call our helpline and we will help you reach the right specialist.
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