Emotional support
Telling people about chemotherapy
Almost nobody has to be told. You decide who knows, what they are told and when. The only people who need to know are those whose help you require. In practice the news travels through the family within a week, so deciding in advance what you will say is what makes it manageable.
The short answer
Who do you have to tell about your cancer treatment?
Almost nobody. You decide who is told, what they are told and when. The only people who need to know are those whose help you actually require: your employer if you need adjustments or leave, the household, and whoever is coordinating your care. Everybody else is a choice.
In practice the decision gets made for most patients, because the news travels through the family within a week and then arrives back as advice, pity and other people's stories. Deciding in advance what you will say, and to whom, is the difference between managing that and being overwhelmed by it.
Write one sentence and use it everywhere
"I am having treatment, it is going as planned, and I would rather talk about something else." Short, warm and closed. It does not invite a follow-up question.
Appoint somebody to carry the news
One relative who updates the extended family, takes the calls, and thanks people. Repeating the same conversation forty times is exhausting in a way nobody anticipates.
You can tell people the diagnosis without telling them the details
Nobody is entitled to your scan results, your prognosis or your blood counts. Saying "I would rather not go into that" is a complete answer.
Decide before your next social event what you will say and who will change the subject for you.Who, and how much
Deciding what each group needs to know
- The household
- They need the practical facts: the schedule, the hard days, what will change, who does what. Withholding this from the people you live with generally creates more strain than it prevents.
- Your employer
- They need to know you require leave or adjustments, and they do not need your diagnosis. Say what you need rather than what you have, and get any agreement in writing.
- Children
- They already know something is wrong and invent something worse. Tell them something simple and true for their age, that it is not their fault and that they cannot catch it.
- Elderly parents
- Families often withhold this to protect them, and the elderly parent usually works it out and then worries alone. Consider telling them with somebody else present.
- Extended family and neighbours
- One sentence, repeated, delivered by your appointed relative wherever possible. This is where the advice, the remedies and the frightening stories come from.
- Colleagues, and anybody on social media
- Entirely your choice, and remember it cannot be taken back once said. Many patients tell one trusted colleague and leave it there.
Not sure whether this applies to you?
Ask an oncologistPractical
How to manage the telling
Decide once, then repeat. Do not improvise each time.
Write your one sentence down
And a second for people who press. Rehearse them once out loud. The strain comes from composing a reply forty times rather than from the information itself.
Keep in reserve
- "I would rather not go into that."
- "Thank you, we are following the doctor's advice."
Appoint one person to carry updates
They tell the extended family, take the calls and thank people for their concern. Give them your sentence and let them use it. This removes most of the daily burden.
Tell your employer what you need, not what you have
Leave, adjustments, a reduced schedule. You are not obliged to disclose a diagnosis to get them. Ask for anything agreed to be put in writing.
Ask for in writing
- Any adjustment or reduced schedule
- How leave will be treated
Decide before social events
What you will say, who will change the subject, and when you are leaving. Weddings and functions are where the questions arrive in volume, and going in prepared changes the evening.
Ask people for something concrete
When they say "tell me if you need anything", name a thing: a lift, a meal on treatment day, an hour of paperwork. It converts sympathy into help and ends the conversation usefully.
Being straight with you
What this page cannot tell you
It cannot tell you what to tell your own family, because households differ enormously and you know yours. What it can say is that complete secrecy is harder to sustain than most patients expect, and that the people you live with generally cope better with information than with silence.
It also cannot tell you your legal position at work. Employment protections differ by sector and by contract, and if there is a real dispute that needs somebody qualified rather than a general page. Nothing here is legal advice.
Consider who will be hurt by learning it late
A sibling or an adult child abroad who finds out at a crisis, having been told nothing for months, is a predictable and avoidable rupture in many families. Tell them early, even briefly.
Secrecy has a cost for the patient
Hiding the diagnosis means managing every conversation, refusing help you need and carrying it alone. Some patients choose it deliberately and that is their right; it is worth choosing with the cost in view.
Be careful on social media
It reaches people you did not intend, cannot be withdrawn, and generates a volume of advice and remedies that is difficult to manage. Many patients regret posting; few regret not having.
What to do next
Write your one sentence and a second for people who press. Appoint one relative to carry updates. Tell your employer what you need rather than what you have, and get it in writing. Decide your plan before the next family function.
Commonly believed
Four assumptions about telling people
You need to tell them what you require, not what you have. Ask for the leave or adjustment you need, get any agreement in writing, and disclose only what you choose to.
They usually work it out and then worry alone without being able to ask. Consider telling them simply, with somebody else present, rather than leaving them to guess.
They will offer, and then wait to be asked. Name something concrete when somebody says to tell you if you need anything: a lift, a meal on treatment day, an hour of paperwork.
Nobody is entitled to your scan results, your prognosis or your counts. "I would rather not go into that" is a complete answer and needs nothing after it.
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Questions we are asked
Common questions about telling people
Do I have to tell anybody?
Only the people whose help you need: the household, your employer if you require leave or adjustments, and whoever coordinates your care. Everybody else is your choice.
What should I say to people who ask?
One prepared sentence: that you are having treatment, it is going as planned, and you would rather talk about something else. Short, warm and closed, so it does not invite a follow-up.
Must I tell my employer my diagnosis?
You need to tell them what you require rather than what you have. Ask for the leave or adjustment, get any agreement in writing, and take a genuine dispute to somebody qualified.
How do we stop the same conversation forty times?
Appoint one relative to carry updates to the extended family, take the calls and thank people. Give them your sentence. It removes most of the daily load from the patient.
Should we tell my elderly mother?
Usually yes, simply and with somebody else present. Families withhold it to protect elderly parents, who generally work it out anyway and then worry alone without being able to ask.
Should I post about it?
Only if you want to, and bearing in mind that it reaches people you did not intend and cannot be withdrawn. It also produces a large volume of advice and remedies to manage.
What about relatives abroad?
Tell them early, even briefly. Finding out at a crisis after months of silence is a predictable rupture, and distant relatives can do genuinely useful things like paperwork and insurance calls.
Can I keep it completely private?
Some patients do, and it is their right. It also means managing every conversation, refusing help you need and carrying it alone, so it is worth choosing deliberately rather than by default.
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Patient stories
Hear it from people we have treated
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Sources
- Macmillan Cancer Support — Your feelings and cancer
- Cancer Research UK — Coping emotionally with cancer
- National Cancer Institute — Feelings and Cancer
This page is general information, not a prescription. Do not change or stop any treatment based on what you read here. If anything is worrying you, contact your own treating team — or call our helpline and we will help you reach the right specialist.
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