The infusion day
A chemotherapy day checklist
Four blocks: what to pack, what to say at registration, what to ask before leaving, and the emergency list for the fridge. One sheet, kept in the treatment bag, ticked off each cycle rather than remembered. It exists because treatment mornings are rushed and anxious, and that is exactly the state in which reports get left on the table and questions go unasked.
The short answer
What goes on a chemotherapy day checklist?
Four blocks: what to pack, what to say at registration, what to ask before leaving, and the emergency list for the fridge. One sheet, kept in the treatment bag, ticked off each cycle rather than remembered.
It exists because treatment mornings are rushed and anxious, and that is exactly the state in which people leave the reports on the table, the charger at home and the questions unasked. A list survives that state better than anyone's memory does.
Write it yourself rather than printing a generic one
Your sheet can carry your own appointment slot, your hospital's paperwork requirements, your escalation numbers and the questions you actually need answered. That is what makes it useful rather than decorative.
Keep the sheet in the bag itself, not in a folder at home. It is no use where it cannot be seen on the morning.Block one
The bag — tick before leaving
- File with all reports in date order, treatment card, identity proof
- Insurance card and scheme papers, approvals checked the day before
- Every medicine in its box, plus a written list with doses
- Your written note of how the last cycle went, and your questions
- Water, and dry plain snacks for both of you
- Phone, charger and a power bank
- Shawl or blanket, and a small cushion
- Headphones, with something already downloaded
- Loose clothing, sleeves that push above the elbow
- Cash or card for pharmacy and canteen
- Lift home arranged, for later than you expect
Not sure whether this applies to you?
Ask an oncologistBlocks two and three
What to say, and what to ask
- Say at registration
- Any fever, vomiting, loose motions, cough or infection since the last cycle. Any new medicine started. Whether you are alone today. Say it unprompted rather than waiting to be asked.
- Say at the doctor's review
- Which days were worst, whether you vomited, whether fluids stayed down, your weight, and whether you took every medicine as prescribed. Effect on eating, sleeping and working rather than how you felt.
- Ask at the review
- What were my counts today? When will they be lowest? Has anything changed, and why? What can we do to make the next cycle easier?
- Ask before you leave
- When is the next cycle, and is there a blood test before it? Which number do I call at night? What should make me call, and what means going straight in?
- Check before you leave
- Medicines physically in the bag, not still at the pharmacy. Written schedule for taking them. Alarms set on the phone. New boxes compared against the old ones.
- Ask once, early in the course
- Can bloods be taken the day before? Can I have the same early slot each cycle? Those two questions shorten every remaining treatment day.
Go to the nearest emergency department the same day, saying clearly that the person is on chemotherapy, for: a fever or shivering uncontrollably · breathlessness or chest pain · nothing staying down · no urine since the morning · bleeding that will not stop · severe stomach pain or a swollen hard stomach · confusion or being very hard to rouse · redness, pain or discharge around a port or line. Do not give paracetamol to bring a temperature down before being seen.
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Making it work
How to actually use the sheet
A checklist only helps if it is where the decision happens. Kept in a drawer it becomes a document nobody consults; kept in the treatment bag it becomes part of the routine within two cycles.
Give it an owner
Usually the attendant rather than the patient. One person restocks the bag, checks the paperwork the day before, and carries the questions. Lists belonging to everybody get maintained by nobody.
Restock the evening after, not the morning before
While you still remember what ran out and what you wished you had brought. Treatment mornings are the worst possible time to be assembling anything.
Add your own lines as you learn them
The snack that worked, the seat that was warmer, the ward's actual phone number, the pharmacy that is cheaper. By the third cycle your sheet should look nothing like a generic one.
Tick it, do not read it
A list you scan and feel reassured by is not doing the job. Physically mark each line as it goes into the bag, because the point is catching the one item you believed was already packed. The reports and the charger are the two most often assumed rather than checked.
Photograph it on more than one phone
Along with the emergency list. Whoever is present at a difficult moment may not be the person who went to the appointment, and a sheet on one fridge helps nobody who is elsewhere.
Put the date on it and rewrite when the plan changes. An out-of-date sheet is worse than none, because people follow it confidently.Being straight with you
What this page cannot tell you
It cannot fill in the parts that matter most. Your appointment slot, your hospital's paperwork requirements, your escalation numbers, the hospital you would reach at night, and your own low-count dates all have to come from your team and your unit.
It also cannot tell you what your unit permits. Food at the chair, how many attendants, whether you can leave and return, and whether bloods can be taken the day before all differ between hospitals. Ask once and write the answers on your sheet.
What it should not be used for
Do not let it become a record of how well the household is performing. It is there to reduce friction on a difficult day, not to produce guilt when something gets forgotten.
What to do next
Copy the four blocks onto one sheet and put it in the treatment bag tonight. Decide who owns it. Ask the two questions that shorten every future day — day-before bloods, and a consistent early slot. Then restock the bag the evening after each cycle rather than the morning before.
Questions we are asked
Common questions about the checklist
Is there a ready-made sheet to download?
The version that works is the one you write, because the useful parts are your appointment slot, your hospital's paperwork, your numbers and your questions. Copy the four blocks onto a sheet and ask your nurse to help fill in the blanks.
Where should we keep it?
In the treatment bag itself, so it is where the decisions happen. Keep the emergency block separately on the fridge, and photograph both on more than one family member's phone. A sheet in a drawer gets consulted by nobody.
Who should own it, the patient or the attendant?
Usually the attendant. They restock the bag, check paperwork the day before and carry the questions. The patient has enough to manage, and a list that belongs to everybody ends up maintained by nobody.
How often should it be updated?
Add lines as you learn them, and rewrite whenever the treatment plan changes. Put the date on it. An out-of-date sheet is worse than none, because people follow it with confidence into instructions that no longer apply.
What is most often forgotten?
The power bank, something warm, and the written account of how the last cycle went. The first two make the hours uncomfortable; the third means the review produces no change and the next cycle is the same as the last.
Should the whole family have a copy?
The emergency block, yes — photographed on every phone. The packing list only needs to be with whoever manages the bag. The person who needs the emergency list at midnight may not be the one who went to the appointment.
We cannot read English. What do we do?
Ask for the instructions in Telugu or whichever language the household uses, and write the sheet in that language. This is a routine request. Do not leave a translation gap between a family and an emergency decision.
Does a list really make a difference?
It makes the avoidable parts go right — the reports that are in the bag, the approval settled the day before, the questions actually asked, the medicines actually collected. It does not change the treatment, and those avoidable parts are most of what makes a day feel bad.
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Sources
- Cancer Research UK — Having chemotherapy
- Macmillan Cancer Support — Having chemotherapy
- National Cancer Institute — Chemotherapy to Treat Cancer
This page is general information, not a prescription. Do not change or stop any treatment based on what you read here. If anything is worrying you, contact your own treating team — or call our helpline and we will help you reach the right specialist.
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