Side effects and symptoms
Which symptoms should send you back to your oncologist?
After breast cancer treatment, it can be hard to know which aches and changes matter. A simple rule helps: report new symptoms that last more than two or three weeks or keep getting worse. This page lists the signs to watch for, those needing urgent care, and those that are usually treatment effects.
On this page
- Which symptoms should send you back to your oncologist?
- Symptoms to report, grouped by where they appear
- Matching the symptom to the right response
- The vocabulary, in plain language
- Honest realities about symptoms after treatment
- Symptoms that are often treatment effects
- How to report a symptom clearly
- What people assume about signs of recurrence
- Common questions about symptoms after breast cancer
The short answer
Which symptoms should send you back to your oncologist?
After breast cancer treatment, it is worth contacting your oncology team about any new symptom that is unusual for you and lasts more than two or three weeks, or that keeps getting worse. The most important ones to report are a new lump or thickening in the breast, scar, chest wall, armpit or above the collarbone; skin changes or swelling in the breast or arm; bone pain that does not settle, especially in the back, hips or ribs, or pain that wakes you at night; a cough or breathlessness that lingers; persistent headaches, particularly with sickness, blurred vision or weakness; pain or swelling under the right ribs, yellow skin or eyes; and unexplained weight loss, loss of appetite or extreme tiredness. It is important to keep this in perspective. Most aches, coughs and tired days after treatment are not caused by cancer. They are far more likely to be ordinary illnesses, the after-effects of treatment, side effects of hormone tablets or the normal changes of getting older. Fear of recurrence can make every twinge feel frightening. A useful rule is to note the symptom, give it a couple of weeks unless it is severe, and call if it has not improved. Some symptoms need urgent help the same day, such as sudden weakness in the legs, new confusion or severe breathlessness.
The two-to-three-week rule
New symptoms that last or worsen over this time deserve a call to your team.
Most symptoms are not recurrence
Treatment effects, everyday infections and ageing explain most aches and pains.
Some signs need urgent care
Sudden leg weakness, confusion or severe breathlessness need same-day attention.
This page gives general information only. Contact your team if you are worried.Area by area
Symptoms to report, grouped by where they appear
These can have many causes; your team will help work out which applies.
Breast, scar and armpit
A new lump, thickening, redness, a rash on the scar, nipple changes or a swollen gland in the armpit or neck.
Bones
Pain in the back, hips, ribs or legs that lasts, is getting worse or disturbs your sleep.
Joint aches from aromatase inhibitors are common and usually different.Chest and breathing
A dry cough that does not clear, breathlessness with everyday activity or chest pain on breathing in.
Head, liver and whole body
Symptoms that affect how you feel overall.
Report if lasting
- Headaches with sickness or vision change
- Pain under the right ribs or yellow skin
- Weight loss without trying
Not sure whether this applies to you?
Ask an oncologistHow quickly to act
Matching the symptom to the right response
Words you may hear
The vocabulary, in plain language
- Recurrence
- Breast cancer that comes back after treatment.
- Local recurrence
- Cancer returning in the treated breast, scar or chest wall.
- Regional recurrence
- Cancer returning in nearby lymph nodes in the armpit or neck.
- Distant recurrence
- Cancer returning in organs such as bones, liver, lungs or brain.
- Spinal cord compression
- Pressure on the spinal cord that can cause leg weakness and needs emergency treatment.
- Fear of recurrence
- Ongoing worry that cancer will come back, which is very common after treatment.
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Being straight with you
Honest realities about symptoms after treatment
Knowing what to watch for is helpful. Knowing its limits is helpful too.
Some recurrences cause no early symptoms
This is why regular examinations and yearly mammograms remain part of follow-up.
Symptoms overlap with treatment effects
Tiredness, joint pain and poor sleep are common on hormone therapy and do not usually mean cancer.
Calling early is never a bother
Oncology teams would rather see you for something harmless than miss something important.
What this page cannot tell you
It cannot diagnose a symptom. Only an assessment by your team can do that.
Common and usually harmless
Symptoms that are often treatment effects
Many survivors worry about symptoms that are expected after treatment. Still mention them, but they are less likely to mean recurrence.
Stiff, achy joints
Very common on aromatase inhibitors, often worse in the morning and improving with movement.
Scar tenderness and numbness
Nerve changes after surgery can cause tingling, burning or shooting pains for months or longer.
Firmness in the treated breast
Radiation and surgery can leave scar tissue or fat necrosis that feels like a lump.
Tiredness
Fatigue can last many months after chemotherapy and radiation.
Practical steps
How to report a symptom clearly
Clear information helps your team decide quickly how soon to see you and which tests to arrange.
Keep a short symptom diary
Note when it started, where it is, how bad it is and what makes it better or worse.
Have your treatment summary ready
Your cancer type, surgery date and current medicines help the person you speak to.
Say if it is new or different
Changes from your usual pattern matter more than long-standing aches.
Ask what happens next
Check whether you need an appointment, a test or simply to monitor it.
Commonly believed
What people assume about signs of recurrence
Most aches have ordinary causes; lasting or worsening pain is what needs checking.
Some recurrences cause no early symptoms, so keep up follow-up visits.
Teams want to hear about lasting new symptoms.
Hormone-positive cancers can occasionally return much later.
Questions we are asked
Common questions about symptoms after breast cancer
How do I tell joint pain from bone metastasis?
Joint pain from hormone tablets usually affects several joints, such as hands, knees and feet, and eases with movement. Pain from cancer in bone is more often in one place, steadily worsens, persists at rest and may wake you at night. Report any pain that fits the second pattern.
I have a cough that has lasted a month. Should I worry?
A cough lasting several weeks deserves a check, though it is most often due to an infection, allergies, acid reflux or effects of radiation on the lung. Your doctor may arrange a chest X-ray. Seek urgent help if you cough blood or become very breathless.
Can a lump in my scar be recurrence?
It can be, but it is more often scar tissue, a stitch reaction, a small fluid collection or fat necrosis. Any new lump in the scar or chest wall should still be examined, and an ultrasound or biopsy may be arranged to be certain.
What headaches are a warning sign?
Headaches that are new, getting steadily worse, worse in the morning, or come with vomiting, blurred or double vision, weakness, confusion or seizures need prompt attention. Ordinary tension headaches or migraines that follow your usual pattern are much less concerning.
Is tiredness a sign the cancer is back?
Tiredness on its own is very common after treatment and rarely means recurrence. Thyroid problems, low blood counts, poor sleep, low mood and hormone tablets are frequent causes. Mention it if it is getting worse or comes with weight loss, fevers or other symptoms.
Who should I contact first?
Contact the oncology team that treated you, as they know your history. If you cannot reach them and the symptom is not urgent, see your family doctor and share your treatment summary. For emergencies such as leg weakness or severe breathlessness, go to the nearest emergency department.
Should I check my breasts myself after treatment?
Getting to know how your treated breast, scar and chest normally look and feel helps you notice changes. There is no need for anxious daily checking. A relaxed look and feel while bathing once a month or so, plus your regular examinations, is enough for most women.
How can I stop panicking about every symptom?
Fear of recurrence is very common. Having a clear plan for which symptoms to report, and when, can reduce constant worry. Counselling, relaxation techniques and survivor groups help many women. Tell your team if anxiety is affecting sleep, eating or daily life.
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Speak to a breast cancer specialist
Call the helpline or leave your details, and someone will help you arrange a consultation at the CION centre nearest you. One helpline serves every CION centre.
Sources
- Breast Cancer Now — Signs and symptoms of breast cancer recurrence
- American Cancer Society — Local, regional and distant breast cancer recurrence
- Macmillan Cancer Support — Breast cancer that has come back
This page is general information, not a prescription. Do not change or stop any treatment based on what you read here. If anything is worrying you, contact your own treating team — or call our helpline and we will help you reach the right specialist.