CION Cancer Clinics
Living with an external biliary drain | CION Cancer Clinics
Most people can bathe, sleep, eat and go out with an external biliary drain once they settle into a routine. The daily work is keeping the skin clean, emptying and recording the bag, and protecting the tube from a pull. This page walks through that care, answers everyday questions about bathing and travel, and lists the changes that mean going to hospital the same day. At CION Cancer Clinics in Hyderabad, our oncologists explain liver cancer in plain words and plan care around you and your family.
On this page
- Can you live a fairly normal life with a biliary drain?
- What does daily care of a biliary drain involve?
- How do you change the dressing around the drain?
- Can I bathe, sleep, travel and work with the drain?
- What do families worry about that is not quite true?
- Who does this page not apply to, and what can it not tell you?
- Common questions about living with a biliary drain
The short answer
Can you live a fairly normal life with a biliary drain?
Yes, most people can walk, eat, sleep, bathe and go out with an external biliary drain once they are used to it. The daily work is small: keep the skin around the tube clean, empty and record the bag, and stop the tube from being pulled. The skill that matters most is knowing which changes mean you must go to hospital today.
What you are looking after
The drain is a thin tube that comes out of your right side and joins a bag. It was placed through the skin to let bile out of a blocked duct, usually because of bile duct cancer, a tumour near the liver or cancer that has spread there. If you have not yet had the drain put in, our page on percutaneous biliary drainage explains the procedure itself.
Who usually does the caring
In many families it is a son, daughter or spouse who does the dressings and keeps the chart. Ask the ward nurse to watch you do one full dressing change before discharge. A short practice in hospital saves a lot of worry at home, especially if you live far from Hyderabad.
Keep the discharge sheet with the drain type, the date it was placed and the hospital's contact details in one folder. Bring it to every visit.Every day
What does daily care of a biliary drain involve?
Your own team's instructions come first. These are the parts that most teams ask families to do.
Look at the skin
Check where the tube enters. A little pinkness is normal. Spreading redness, swelling, pus, or bile leaking around the tube is not.
Empty and record the bag
Empty it before it is half full so its weight does not pull on the tube. Write down the amount and the colour each time. A simple notebook is enough.
Note down
- How much drained since last time
- The colour, and whether it is clear or cloudy
- Any fever, pain or leak that day
Secure the tube
Tape a loop of tubing to your skin so a tug pulls on the tape, not on the drain. Keep the bag below the level of the liver, strapped to your leg or clothing.
Change the dressing
Wash your hands first. Change it as often as your nurse advises, and any time it gets wet or dirty. Never cut the stitch that holds the tube.
Not sure whether this applies to you?
Ask an oncologistStep by step
How do you change the dressing around the drain?
Get ready
Use a clean, flat surface. Lay out the dressing, gauze, tape and any cleaning solution your nurse gave you. Wash your hands well with soap and water.
Remove the old dressing
Hold the tube still with one hand while you peel the old dressing off with the other. Pull towards the tube, not away from it.
Clean and check
Clean the skin gently in small circles, moving outwards from the tube. Look at the stitch and check the tube has not slipped. Many tubes have a mark at the skin, so compare it with where it sat before.
Cover and secure
Put on a fresh dressing and tape the loop of tubing in place. Make sure there are no kinks between your side and the bag.
Flush only if told to
Some teams ask families to flush the drain with sterile salt water. Do this only if you were shown how. Never pull back on the syringe.
A fever, shivering or shaking chills, new or worsening pain in the right side, the drain suddenly stopping, a heavy bile leak around the tube, blood in the bag, yellow eyes coming back, or confusion or unusual drowsiness. Infection in the bile ducts can turn serious within hours. If the tube falls out, cover the hole with a clean dressing, keep the tube, and go to an emergency department straight away. The track can close quickly.
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Ordinary life
Can I bathe, sleep, travel and work with the drain?
- Bathing
- Most people can shower with the dressing covered by a waterproof layer. Avoid soaking in a tub or swimming while the tube is in. Change the dressing if it gets wet.
- Sleeping
- Sleep on your back or left side at first, so you do not lie on the tube. Hang the bag beside the bed, below the level of your body.
- Clothes
- Loose cotton tops and a waistband that does not press on the tube are the easiest. A small cloth pouch for the bag helps when you go out.
- Eating and drinking
- An external drain removes bile, along with fluid and salts. Drink enough, and do not cut protein unless a doctor tells you to.
- Travel
- Short trips are usually fine. For a long bus or train journey home to a district, carry spare dressings, a spare bag and your discharge sheet.
- Work
- Desk work is often possible. Avoid heavy lifting and bending movements that tug on the tube until your team says otherwise.
Commonly believed
What do families worry about that is not quite true?
Bile draining is the purpose of the tube. It relieves the blockage. The fluid and salts lost can be replaced by drinking well, and your team may check salts in the blood at follow-up visits.
Gentle walking helps recovery and lowers the risk of clots and chest infection. Food should include protein, such as dal, eggs, curd or fish, unless a doctor has said otherwise.
A drain that suddenly stops, new leaking or returning yellow eyes can come before a fever. Call your team the same day about any of these.
Drains block and wear out. They are usually changed at planned intervals, and some are converted into an internal stent so the bag can go. Ask when your next change is due.
Being straight with you
Who does this page not apply to, and what can it not tell you?
This page is about an external or internal-external drain coming out through the skin. It does not apply to a stent placed by ERCP, which sits fully inside the body with no bag. For that, read blocked stents, fever and when to come back urgently. It also does not cover a drain for fluid in the abdomen, which is a different tube with different care.
What this page cannot answer
It cannot tell you how long your drain will stay, whether it can become an internal stent, or when cancer treatment can begin. Those depend on your scans, your bilirubin and the plan your tumour board has made. Your own team's written instructions always come before anything you read here, including how often to change the dressing.
Who helps with what
Drain changes and fixes are done by interventional radiology. CION coordinates these through NABH-accredited partner hospitals, and your team will tell you where to go. CION's oncologists plan the cancer treatment, look after symptoms such as itching, and help with scheme paperwork.
Save the helpline number and the partner hospital's emergency contact in your phone before you leave the ward.Questions we are asked
Common questions about living with a biliary drain
How often should I empty the bag?
Empty it before it is half full, and at least once in the morning and once at night. A heavy bag pulls on the tube and can dislodge it. Each time, note the amount and colour in a notebook, so your team can see the trend at the next visit.
What colour should the bile be?
Golden yellow to dark green is normal. Cloudy, thick or foul-smelling bile can mean infection. Bright red blood or clots need hospital the same day. If the colour changes and you are unsure what it means, call your team rather than waiting for the next appointment.
The amount draining has dropped suddenly. What should I do?
First check the tube for kinks and make sure the bag is below the liver and the tap is open. If the flow does not come back, or there is pain, leaking or fever, go to hospital today. The tube may be blocked or may have moved.
Can the drain be removed one day?
Sometimes. After surgery, or once an internal stent is in place, the outside tube may be taken out. In other cases the drain stays and is changed when needed. Ask your team what the plan is for your drain, so you know what to expect.
The skin around the tube is itchy and sore. Is that normal?
Mild soreness and some itching under the tape are common. Bile leaking onto the skin can make it raw, so keep it dry and change wet dressings promptly. Spreading redness, pus or a leak that will not stop needs a check by your team.
Can I have chemotherapy with a drain in?
Yes, many people do. Chemotherapy usually starts once the bilirubin has come down and any infection is treated. Your oncologist will check the blood tests and the drain before each treatment. Tell the chemotherapy team straight away about any fever at home.
Is it safe to have sex or hug children with a drain?
Yes, with care for the tube. Choose positions that do not press on your right side, and secure the tubing first. A drain does not pass anything on to a partner or child. Ask your team if anything about intimacy worries you; it is a normal question.
Where do I get dressings and bags after going home?
The discharge team usually tells you which supplies to buy and where. Keep a few spares at home, especially if you live far from the hospital. If you are unsure, call the CION helpline and we will point you to the right place.
Meet CION's liver cancer specialists. Bring your scan reports and liver blood tests.
Our medical and surgical oncologists plan liver cancer care together, weighing the tumour and how well your liver works before choosing surgery, a liver-directed procedure or medicines.
Dr. C. Raghavendra Reddy
MBBS(Gold Medal), DNB(General Medicine), DM(Medical Oncology)(Gold Medal)
Dr. Bharati Devi Gorantla
MBBS, MD(General Medicine), DM(Medical Oncology)(Adyar,Chennai), ECMO, MRCP SCE(UK)
Dr. Owais Mohammed
MBBS, MD (General Medicine), DrNB (Medical Oncology), ECMO, MRCP SCE (Medical Oncology) (UK)
Dr. Muralidhar Muddusetty
MBBS (AIIMS), MS (Surgery) (AIIMS), DNB (Surgical Oncology), MRCS (Edinburgh)
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Sources
- American Cancer Society — Palliative Therapy for Bile Duct Cancer
- Macmillan Cancer Support — Bile duct cancer (cholangiocarcinoma)
- Cancer Research UK — Treatment for bile duct cancer
- MedlinePlus — Jaundice
This page is general information, not a prescription. Do not change or stop any treatment based on what you read here. If anything is worrying you, contact your own treating team — or call our helpline and we will help you reach the right specialist.
Keep reading
Related pages
Talk to us
Worried about how the drain is doing at home?
Tell us what you are seeing in the bag or around the tube and we will help you work out what needs checking and where. We can also help plan the cancer treatment that comes next. One helpline serves every CION centre.